Extended files for "The Missing Billion: Using participatory approaches to improve access to healthcare for disabled people in Uganda"

Menya, AORCID logo (2026). Extended files for "The Missing Billion: Using participatory approaches to improve access to healthcare for disabled people in Uganda". [Dataset]. London School of Hygiene & Tropical Medicine, London, United Kingdom. 10.17037/DATA.00005070.
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Extended files for the formative research conducted under the Missing Billion project in Uganda, which focused on designing and testing community-based, participatory approaches to make healthcare more inclusive and accessible. This formative work contributed evidence to inform the design, content, and implementation of disability-inclusive health interventions, including the structure and function of Participatory Disability Action Groups.

Keywords

Healthcare; healthcare access; People with Disabilities; Health-seeking; Behaviour; Pathways; Uganda

Item Type Dataset
Resource Type
Resource Type
Resource Description
Dataset
Qualitative
Capture method Interview: Face-to-face
Collection Period
From
To
1 September 2022
30 November 2022
Date 18 March 2026
Language(s) of written materials English
Creator(s) Menya, AORCID logo
Associated roles Ssemata, AS (Regional Co-ordinator); Sande, S (Researcher); Smythe, T (Researcher); Kuper, H (Principal Investigator) and Bannink, F (Co-Investigator)
LSHTM Faculty/Department MRC/UVRI and LSHTM Uganda Research Unit
Research Group Disability Research Group; International Center for Evidence in Disability
Participating Institutions London School of Hygiene & Tropical Medicine, London, United Kingdom; Medical Research Council/ Uganda Virus Research Institute and London School of Hygiene and Tropical Medicine Uganda Research Unit; Stellenbosch University, Stellenbosch, South Africa
Funders
Project
Funder
Grant Number
Funder URI
The Missing Billion: Using participatory approaches to improve access to healthcare for disabled people in Uganda
National Institute for Health and Care Research
NIHR301621
https://doi.org/10.13039/501100000272
Date Deposited 18 Mar 2026 15:07
Last Modified 18 Mar 2026 16:57
Publisher London School of Hygiene & Tropical Medicine

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Data / Code

Summary_of_Underlying_Data.docx
subject
Data
Available under Creative Commons: Attribution 4.0
info
Anonymised interview quotes from qualitative research on health-seeking behaviours and pathways among people with disabilities in Eastern Uganda (Extended file 6)
description
application/vnd.openxmlformats-officedocument.wordprocessingml.document
folder_info
21kB
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Documentation

Missing_Billion_data_codebook.xlsx
subject
Documentation
Available under Creative Commons: Attribution 4.0
info
Codebook for Missing Billion formative study data (Extended file 2)
grid_on
application/vnd.openxmlformats-officedocument.spreadsheetml.sheet
folder_info
17kB
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Participant_Information_Sheet.docx
subject
Documentation
Available under Creative Commons: Attribution 4.0
info
Participant information sheet for people with disabilities (Extended file 3)
description
application/vnd.openxmlformats-officedocument.wordprocessingml.document
folder_info
36kB
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Assent_form.docx
subject
Documentation
Available under Creative Commons: Attribution 4.0
info
Assent form for people with disabilities and children (Extended file 5)
description
application/vnd.openxmlformats-officedocument.wordprocessingml.document
folder_info
29kB
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Consent_form.docx
subject
Documentation
Available under Creative Commons: Attribution 4.0
info
Consent forms for people with disabilities (Extended file 4)
description
application/vnd.openxmlformats-officedocument.wordprocessingml.document
folder_info
33kB
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Study Instrument

Qualitative_Interview_Guide.docx
subject
Study Instrument
Available under Creative Commons: Attribution 4.0
info
Qualitative interview guide for people with disabilities (Extended file 1)
description
application/vnd.openxmlformats-officedocument.wordprocessingml.document
folder_info
34kB
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