Data collection tools for a study on establishing the feasibility of parent support groups for children with Congenital Zika Syndrome and their families in Colombia

Smythe, TORCID logo, Reichenberger, V, Pinzón, EM, Hurtado, IC, Rubiano, L and Kuper, HORCID logo (2021). Data collection tools for a study on establishing the feasibility of parent support groups for children with Congenital Zika Syndrome and their families in Colombia. [Dataset]. London School of Hygiene & Tropical Medicine, London, United Kingdom. 10.17037/DATA.00002245.
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A set of research tools used to collect information from participants, facilitators and stakeholders of 4 pilot parent support groups for children with Congenital Zika Syndrome, in Valle del Cauca, Colombia. It includes questionnaires for participants and topic guides for semi-structured interviews with participants, facilitators and stakeholders.

Keywords

Congenital zika syndrome, parent support, Disability

1-Pre-and-post_questionnaires_English.xlsx
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Appendix 1: Participant pre and post questionnaire - English version (MS Excel)
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1-Pre-and-post_questionnaires_Spanish.xlsx
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Appendix 1: Participant pre and post questionnaire - Spanish version (MS Excel)
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2-Participants_topic_guide_English.docx
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Appendix 2: Topic guide focussed on satisfaction with, and perceived impact of, the group intervention (English language)
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2a-Pre-intervention_topic_guide_Spanish.docx
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Appendix 2a: Participant interview topic guide - Pre-intervention (Spanish language)
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2b-Endline_topic_guide_Spanish.docx
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Appendix 2b: Participant interview topic guide - Endline (Spanish language)
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3-Facilitators_topic_guide_English.docx
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Appendix 3: A topic guide focussed on the reflections and lessons learned, perception of participants’ engagement and impact of ‘Juntos’ (English language)
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3-Facilitators_topic_guide_Spanish.docx
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Appendix 3: A topic guide focussed on the reflections and lessons learned, perception of participants’ engagement and impact of ‘Juntos’ (Spanish language)
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4-Key_stakeholders_topic_guide_English.docx
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Appendix 4: A topic guide focussed on practical components of implementing the sessions, reflections on lessons learned and potential future expansion (English language)
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4-Key_stakeholders_topic_guide_Spanish.docx
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Appendix 4: A topic guide focussed on practical components of implementing the sessions, reflections on lessons learned and potential future expansion (Spanish language)
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2245_UserGuide.html
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User guide for collection
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