XPHACTOR cross-sectional patient cost dataset

Foster, N, Hanifa, Y, Pillai, N, Roycent, T, Fielding, K, Vassall, A and Grant, AD. 2018. XPHACTOR cross-sectional patient cost dataset. [Online]. London School of Hygiene & Tropical Medicine, London, United Kingdom. Available from: https://doi.org/10.17037/DATA.00000791.

Foster, N, Hanifa, Y, Pillai, N, Roycent, T, Fielding, K, Vassall, A and Grant, AD. XPHACTOR cross-sectional patient cost dataset [Internet]. London School of Hygiene & Tropical Medicine; 2018. Available from: https://doi.org/10.17037/DATA.00000791.

Foster, N, Hanifa, Y, Pillai, N, Roycent, T, Fielding, K, Vassall, A and Grant, AD (2018). XPHACTOR cross-sectional patient cost dataset. [Data Collection]. London School of Hygiene & Tropical Medicine, London, United Kingdom. https://doi.org/10.17037/DATA.00000791.

Description

The costs incurred by patients in seeking care are considered a potential barrier to healthcare seeking behaviour. Given the global move towards Universal Health Care (UHC) which includes financial protection from the cost of ill health, there is a need to estimate the burden of costs incurred by patients to identify possible policy interventions. We used patient cost data collected alongside the “Xpert for people attending HIV/AIDS care: test or review?” (XPHACTOR) study to estimate the costs incurred by the study population when accessing care. In addition, we also looked at the cost burden on caregivers. This dataset includes observations for 289 people accessing HIV/AIDS care among

Methods

Description of data capture

Data collection: Double entry to EpiData, followed by a process for identifying data entry errors with export to STATA for analysis Data Analysis and Preparation: Cross sectional patient cost study. Estimated direct costs, indirect (productivity) costs, carer and coping costs. Differences in cost burden were explored by individual income level as well as HIV disease severity (CD4 count). Quality Controls: The patient cost study was conducted alongside the XPHACTOR study, quality controls included a review of completed paper questionnaires by the health economist. Data entry errors were minimised through double data entry and discrepancies were investigated by comparing conflicting entries against the paper questionnaires.

Data capture method

Interview: Face-to-face, Questionnaire: Fixed form - Paper

Data Collection Period

From	To
June 2013	March 2014

Date (Date submitted to LSHTM repository)

1 August 2018

Geographical area covered (offline during plugin upgrade)

North Latitude	East Longitude	South Latitude	West Longitude
-26.1744	28.3524	-26.1813	28.3389

Language(s) of written materials

English

People & Groups

Data Creators	Foster, N, Hanifa, Y, Pillai, N, Roycent, T, Fielding, K, Vassall, A and Grant, AD
Associated roles	Grant, AD (Principal Investigator), Churchyard, GJ (Principal Investigator), Chihota, V (Co-Investigator), Ndlovu, N (Co-Investigator), Charalambous, S (Co-Investigator), Stevens, W (Co-Investigator), Nicol, M (Co-Investigator), Karstaedt, A (Co-Investigator), Sahid, F (Co-Investigator), Adonis, L (Co-Investigator), McCarthy, K (Co-Investigator), Foster, N (Co-Investigator), Sinanovic, E (Co-Investigator) and Vassall, A (Co-Investigator)
LSHTM Faculty/Department	Faculty of Epidemiology and Population Health > Dept of Infectious Disease Epidemiology Faculty of Infectious and Tropical Diseases > Dept of Clinical Research Faculty of Public Health and Policy > Dept of Global Health and Development
Research Centre	TB Centre
Participating Institutions	London School of Hygiene & Tropical Medicine, London, United Kingdom, The Aaurum Institute, Johannesburg, South Africa, National Health Laboratory Services, Johannesburg, South Africa, University of Cape Town, Rondebosch, Cape Town, South Africa, Gauteng Department of Health, Johannesburg, South Africa