The following Digital Object Identifier should be used when citing or linking to this resource.
https://doi.org/10.17037/DATA.00000791
The costs incurred by patients in seeking care are considered a potential barrier to healthcare seeking behaviour. Given the global move towards Universal Health Care (UHC) which includes financial protection from the cost of ill health, there is a need to estimate the burden of costs incurred by patients to identify possible policy interventions. We used patient cost data collected alongside the “Xpert for people attending HIV/AIDS care: test or review?” (XPHACTOR) study to estimate the costs incurred by the study population when accessing care. In addition, we also looked at the cost burden on caregivers. This dataset includes observations for 289 people accessing HIV/AIDS care among
Cross sectional patient cost study. Estimated direct costs, indirect (productivity) costs, carer and coping costs. Differences in cost burden were explored by individual income level as well as HIV disease severity (CD4 count).
Two primary healthcare clinics in Erkhululeni district, Gauteng province, South Africa.
Data collected between June 2013 and March 2014.
The patient cost study was conducted alongside the XPHACTOR study, quality controls included a review of completed paper questionnaires by the health economist. Data entry errors were minimised through double data entry and discrepancies were investigated by comparing conflicting entries against the paper questionnaires.
Human population
A study ID was allocated to each participant through the clinical study; the same identifier was used in the patient cost questionnaires. The paper copies of the completed questionnaires are archived in a locked room.
Patient costs; HIV positive; Tuberculosis; South Africa
English
XPHACTOR
Bill and Melinda Gates Foundation
OPP1034523
Data was obtained from study participants on the basis that it would be used for HIV and TB related research. To comply with the study’s ethical obligations, the dataset can only be made available on condition that the requester provides details of their research and signs a data sharing agreement.
Forename | Surname | Faculty / Dept | Institution | Role |
Nicola | Foster | Health Economics Unit | University of Cape Town | Contact Person, Researcher, Data Creator |
Yasmeen | Hanifa | TB centre | London School of Hygiene and Tropical Medicine | Data Collector,
Researcher, Work Package Leader |
Natasha | Pillai | TB centre | London School of Hygiene and Tropical Medicine | Researcher |
Tumbare | Roycent | Health Economics Unit | University of Cape Town | Data Manager |
Fielding | Katherine | Epidemiology & Population Health / Infectious Disease Epidemiology TB centre | London School of Hygiene and Tropical Medicine | Researcher |
Vassall | Anna | Public Health & Policy / Global Health & Development TB centre | London School of Hygiene and Tropical Medicine | Supervisor |
Alison D | Grant | Infectious & Tropical Diseases / Clinical Research TB centre | London School of Hygiene and Tropical Medicine | Project Leader |
Forename | Surname | Faculty / Dept | Institution | Role |
Alison D | Grant | Infectious & Tropical Diseases / Clinical Research TB centre | London School of Hygiene and Tropical Medicine | Principal Investigator |
Gavin J | Churchyard | The Aurum Institute | Principal Investigator | |
Violet | Chihota | The Aurum Institute | Co-Investigator | |
Nontobeko | Ndlovu | The Aurum Institute | Co-Investigator | |
Salome | Charalambous | The Aurum Institute | Co-Investigator | |
Wendy | Stevens | National Health Laboratory Services | Co-Investigator | |
Mark | Nicol | University of Cape Town | Co-Investigator | |
Alan | Karstaedt | Gauteng department of Health | Co-Investigator | |
Faieza | Sahid | Gauteng Department of Health | Co-Investigator | |
Lungiswa | Adonis | Gauteng department of Health | Co-Investigator | |
Kerrigan | McCarthy | The Aurum Institute | Co-Investigator | |
Nicola | Foster | Health Economics Unit | University of Cape Town | Co-Investigator |
Edina | Sinanovic | Health Economics Unit | University of Cape Town | Co-Investigator |
Anna | Vassall | Public Health & Policy / Global Health & Development TB centre |
London School of Hygiene and Tropical Medicine | Co-Investigator |
Filename | Description | Access status | Licence |
Patient_costs_codebook.html | A description of variables and variable coding for the dataset | Open to all | Creative Commons Attribution (CC-BY) for open data |
InfoSheet_and_ConsentForm.pdf | The XPHACTOR study information sheet and consent form | Open to all | Creative Commons Attribution (CC-BY) for open data |
Data_Collection_Form.pdf | The XPHACTOR economic study questionnaire | Open to all | Creative Commons Attribution (CC-BY) for open data |
Patient cost dataset | Cross-sectional patient cost dataset used to replicate analysis presented in paper | Request access for all | Data Sharing Agreement for request access |