XPHACTOR cross-sectional patient cost dataset

Permanent Identifier

The following Digital Object Identifier should be used when citing or linking to this resource.

https://doi.org/10.17037/DATA.00000791

Data Description

The costs incurred by patients in seeking care are considered a potential barrier to healthcare seeking behaviour. Given the global move towards Universal Health Care (UHC) which includes financial protection from the cost of ill health, there is a need to estimate the burden of costs incurred by patients to identify possible policy interventions. We used patient cost data collected alongside the “Xpert for people attending HIV/AIDS care: test or review?” (XPHACTOR) study to estimate the costs incurred by the study population when accessing care. In addition, we also looked at the cost burden on caregivers. This dataset includes observations for 289 people accessing HIV/AIDS care among

Data Collection Methods

Data Analysis and Preparation

Cross sectional patient cost study. Estimated direct costs, indirect (productivity) costs, carer and coping costs. Differences in cost burden were explored by individual income level as well as HIV disease severity (CD4 count).

Geographic regions

Two primary healthcare clinics in Erkhululeni district, Gauteng province, South Africa.

Key dates

Data collected between June 2013 and March 2014.

Quality Controls

The patient cost study was conducted alongside the XPHACTOR study, quality controls included a review of completed paper questionnaires by the health economist. Data entry errors were minimised through double data entry and discrepancies were investigated by comparing conflicting entries against the paper questionnaires.

Species:

Human population

Privacy:

 A study ID was allocated to each participant through the clinical study; the same identifier was used in the patient cost questionnaires. The paper copies of the completed questionnaires are archived in a locked room.

Ethics

Keywords

Patient costs; HIV positive; Tuberculosis; South Africa

Language of written material

English

Project title

XPHACTOR

Funder/Sponsor

Bill and Melinda Gates Foundation

Grant Number

OPP1034523

Additional Information

Data was obtained from study participants on the basis that it would be used for HIV and TB related research. To comply with the study’s ethical obligations, the dataset can only be made available on condition that the requester provides details of their research and signs a data sharing agreement.

Data Creators

Forename Surname Faculty / Dept Institution Role
Nicola Foster Health Economics Unit University of Cape Town Contact Person, Researcher, Data Creator
Yasmeen Hanifa TB centre London School of Hygiene and Tropical Medicine Data Collector, Researcher,
Work Package Leader
Natasha Pillai TB centre London School of Hygiene and Tropical Medicine Researcher
Tumbare Roycent Health Economics Unit University of Cape Town Data Manager
Fielding Katherine Epidemiology & Population Health / Infectious Disease Epidemiology   TB centre London School of Hygiene and Tropical Medicine Researcher
Vassall Anna Public Health & Policy / Global Health & Development   TB centre London School of Hygiene and Tropical Medicine Supervisor
Alison D Grant Infectious & Tropical Diseases / Clinical Research TB centre London School of Hygiene and Tropical Medicine Project Leader

Associated Roles

Forename Surname Faculty / Dept Institution Role
Alison D Grant Infectious & Tropical Diseases / Clinical Research TB centre London School of Hygiene and Tropical Medicine Principal Investigator
Gavin J Churchyard   The Aurum Institute Principal Investigator
Violet Chihota   The Aurum Institute Co-Investigator
Nontobeko Ndlovu   The Aurum Institute Co-Investigator
Salome Charalambous   The Aurum Institute Co-Investigator
Wendy Stevens   National Health Laboratory Services Co-Investigator
Mark Nicol   University of Cape Town Co-Investigator
Alan Karstaedt   Gauteng department of Health Co-Investigator
Faieza Sahid   Gauteng Department of Health Co-Investigator
Lungiswa Adonis   Gauteng department of Health Co-Investigator
Kerrigan McCarthy   The Aurum Institute Co-Investigator
Nicola Foster Health Economics Unit University of Cape Town Co-Investigator
Edina Sinanovic Health Economics Unit University of Cape Town Co-Investigator
Anna Vassall Public Health & Policy / Global Health & Development
TB centre
London School of Hygiene and Tropical Medicine Co-Investigator

File Description

Filename Description Access status Licence
Patient_costs_codebook.html A description of variables and variable coding for the dataset Open to all Creative Commons Attribution (CC-BY) for open data
InfoSheet_and_ConsentForm.pdf The XPHACTOR study information sheet and consent form Open to all Creative Commons Attribution (CC-BY) for open data
Data_Collection_Form.pdf The XPHACTOR economic study questionnaire Open to all Creative Commons Attribution (CC-BY) for open data
Patient cost dataset Cross-sectional patient cost dataset used to replicate analysis presented in paper Request access for all Data Sharing Agreement for request access