McCallum, AD, Nyirenda, D, Lora, W, Khoo, SH, Sloan, DJ, Mwandumba, HC, Desmond, N and Davies, GR. 2016. Data from: Perceptions of research bronchoscopy in Malawian adults with pulmonary tuberculosis: a cross-sectional study. [Online]. Dryad. Available from: https://doi.org/10.5061/dryad.sp152
McCallum, AD, Nyirenda, D, Lora, W, Khoo, SH, Sloan, DJ, Mwandumba, HC, Desmond, N and Davies, GR. Data from: Perceptions of research bronchoscopy in Malawian adults with pulmonary tuberculosis: a cross-sectional study [Internet]. Dryad; 2016. Available from: https://doi.org/10.5061/dryad.sp152
McCallum, AD, Nyirenda, D, Lora, W, Khoo, SH, Sloan, DJ, Mwandumba, HC, Desmond, N and Davies, GR (2016). Data from: Perceptions of research bronchoscopy in Malawian adults with pulmonary tuberculosis: a cross-sectional study. [Data Collection]. Dryad. https://doi.org/10.5061/dryad.sp152
Description
Bronchoscopy is an established research tool in Malawi, enabling collection of pulmonary samples for immunological, pharmacological, and microbiological studies. It is, however, an invasive clinical procedure that offers no direct benefit to volunteering participants when used in a research capacity alone, and thus informed consent is essential. This study aimed to explore TB patients’ understanding of research bronchoscopy, what would motivate them to participate in research bronchoscopy, and their concerns, in order to inform consenting processes for future clinical studies. We used a qualitative research design. Two focus group discussions were conducted with community members and TB patients to understand their perceptions of bronchoscopy. Transcripts were coded by multiple co-authors and thematic content analysis was used to analyse main findings. We found that Malawian patients with pulmonary TB were willing to participate in a study using research bronchoscopy for health assessment and access to improved healthcare. We identified information of value to potential participants when consenting to help assuage some of the anxieties expressed by participants. Patient and public involvement is essential to improve informed consent and institutional trust.
Keywords
Data capture method | Interview: Face-to-face |
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Date (Published in a 3rd party system) | 9 November 2016 |
Language(s) of written materials | English |
Data Creators | McCallum, AD, Nyirenda, D, Lora, W, Khoo, SH, Sloan, DJ, Mwandumba, HC, Desmond, N and Davies, GR |
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LSHTM Faculty/Department | Faculty of Public Health and Policy > Dept of Global Health and Development |
Participating Institutions | Liverpool School of Hygiene & Tropical Medicine, Liverpool, United Kingdom |
Date Deposited | 31 Mar 2025 08:48 |
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Last Modified | 31 Mar 2025 08:49 |
Publisher | Dryad |