Adhering to HIV treatment during adolescence: A multi method qualitative study in Uganda
Rhodes, T
, Bernays, S, Seeley, J, Namukwaya Kihika, S and Paparini, S
(2016).
Adhering to HIV treatment during adolescence: A multi method qualitative study in Uganda.
[Data Collection].
UK Data Archive, Colchester, Essex, United Kingdom.
10.5255/UKDA-SN-852538.
, Bernays, S, Seeley, J, Namukwaya Kihika, S and Paparini, S
(2016).
Adhering to HIV treatment during adolescence: A multi method qualitative study in Uganda.
[Data Collection].
UK Data Archive, Colchester, Essex, United Kingdom.
10.5255/UKDA-SN-852538.
Adhering to HIV treatment everyday for the rest of your life is difficult. This may be particularly acute for an adolescent coming to terms with their HIV status and managing the challenges of growing up with HIV. This qualitative study focused on the lived experience of HIV treatment adherence for adolescents in Uganda (aged 10-24) taking part in an international clinical trial. Our research explored the acceptability of short cycle therapy (SCT), 5 days on HIV treatment and 2 days off, to the trial participants' themselves. This involved conducted qualitative longitudinal data with young people participating in the trial and their carers using in-depth interviews, audio diaries and focus group discussions.
Additional Information
The data is stored in the MRC/UVRI archive. Given the sensitive nature of the data, access is restricted. However if researchers are interested in accessing the data they can apply to do so by emailing Prof Janet Seeley at mrc@mrcuganda.org. Access will be considered on a case by case basis.
Keywords
Adolescence, Chronic illness| Item Type | Data Collection |
|---|---|
| Description of data capture | This was a qualitative study. We conducted three repeat in-depth interviews with 26 trial participants over the duration of the trial (2011-2014) from both the SCT and control (continuous therapy) arms. These interview were conducted towards the start of the trial, during the second half of the trial and during the process of being moved into the follow-up stage of the trial. There were two other sites connected to this study (UK and USA), funding for which came from different sources. 43 young people were involved in total in the interviews. We adopted a purposive sampling approach to reflect the diversity of the trial population in terms of sex, age and ethnicity. Participants were also invited to keep an audio diary, however we found this to be very challenging in this setting as although enthusiastic participants were not confident that they could keep their diaries safe once recorded and so generally chose not to use them. We also invited young people to keep a written diary should they have wanted to. No participants took up this opportunity. With the permission of the young people, we conducted 15 interviews with a subsample of their carers. We adopted a theoretically informed approach to our carer sample to include a wide range of carer/s, including non-biological carers, and circumstances. We also conducted 4 focus group discussions (2015) with 24 young people after they had been notified of the trial results to explore their reactions and attitudes towards SCT being rolled-out more broadly. Of this 24, 18 had been involved in the qualitative interviews through the trial and 6 trial participants were also included who had not previously been involved. |
| Capture method | Interview: Face-to-face, Focus Group: Face-to-Face, Writing and/or diary |
| Collection Period |
From To 19 January 2012 30 September 2015 |
| Date | 7 December 2016 |
| Geographical area covered (offline during plugin upgrade) |
North Latitude East Longitude South Latitude West Longitude 0.413464 32.6826 0.274764 32.4938 |
| Language(s) of written materials | English |
| Creator(s) |
Rhodes, T, Bernays, S, Seeley, J, Namukwaya Kihika, S and Paparini, S
|
| LSHTM Faculty/Department |
Faculty of Public Health and Policy > Dept of Global Health and Development Faculty of Public Health and Policy > Dept of Public Health, Environments and Society |
| Participating Institutions | London School of Hygiene & Tropical Medicine, London, United Kingdom, MRC/UVRI Uganda |
| Funders |
Project Funder Grant Number Funder URI Adhering to HIV treatment during adolescence: A multi method qualitative study in Uganda ES/1004785/1 UNSPECIFIED |
| Date Deposited | 02 Mar 2017 17:37 |
| Last Modified | 27 Apr 2022 18:19 |
| Publisher | UK Data Archive |
Carer_TopicGuide.docx
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subject - Study Instrument
- Creative Commons: Attribution
- Available under Creative Commons: Attribution 3.0
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info - Breather Carer topic guide - MS Word document
description - application/vnd.openxmlformats-officedocument.wordprocessingml.document
- folder_info
- 25kB
FGDs_TopicGuide.docx
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subject - Study Instrument
- Creative Commons: Attribution
- Available under Creative Commons: Attribution 3.0
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info - Focus group topic guide with Breather trial participants
description - application/vnd.openxmlformats-officedocument.wordprocessingml.document
- folder_info
- 19kB
InformationSheets_ConsentForms.docx
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subject - Documentation
- Creative Commons: Attribution
- Available under Creative Commons: Attribution 3.0
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info - Information sheets and consent forms for the Breather qualitative study
description - application/vnd.openxmlformats-officedocument.wordprocessingml.document
- folder_info
- 38kB
Phase1_TopicGuide.docx
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subject - Study Instrument
- Material Transfer Agreement
- Available under Material Transfer Agreement
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info - Penta Breather – Phase 1- Draft topic guide
description - application/vnd.openxmlformats-officedocument.wordprocessingml.document
- folder_info
- 21kB
Phase2_TopicGuide.docx
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subject - Study Instrument
- Creative Commons: Attribution
- Available under Creative Commons: Attribution 3.0
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info - Phase 2- YPLHIV interview
description - application/vnd.openxmlformats-officedocument.wordprocessingml.document
- folder_info
- 25kB
Phase3_TopicGuide.docx
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subject - Study Instrument
- Creative Commons: Attribution
- Available under Creative Commons: Attribution 3.0
-
info - Phase 3- YPLHIV interview
description - application/vnd.openxmlformats-officedocument.wordprocessingml.document
- folder_info
- 24kB
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