Data supporting "The economic burden incurred by families caring for a young child with developmental disability in Uganda"

A dataset containing information on costs to families relating to caring for a young child with developmental disability in Uganda, alongside developmental disability measures and socio-demographic characteristics. The data were collected as part of a feasibility trial of an early care and support programme for young children with development disabilities and their families. Data are included for the 70 participants and their families who were included in the analyses described in the corresponding paper "The economic burden incurred by families caring for a young child with developmental disability in Uganda".

Additional Information

Researchers wishing to access the dataset are invited to complete a data application form. Application will be evaluated on the basis of their compatibility with the study's research objectives and the ability to provide de‐identified data sufficient to meet the intended purpose, without breaching participant confidentiality or the study's ethical and legal commitments. Applications will be reviewed by the PI in consultation with the UVRI research ethics committee. Successful applicants will be asked to sign a Data Transfer Agreement prior to being provided with the data.

Keywords

Developmental disability, Cost, Child