Data supporting "The economic burden incurred by families caring for a young child with developmental disability in Uganda" – User Guide

Permanent identifier

https://doi.org/10.17037/DATA.00003311

Description

This dataset contains information on costs to families relating to caring for a young child with developmental disability in Uganda, alongside developmental disability measures and socio-demographic characteristics. The data were collected as part of a feasibility trial of an early care and support programme for young children with development disabilities and their families. Data are included for the 70 participants and their families who were included in the analyses described in the corresponding paper "The economic burden incurred by families caring for a young child with developmental disability in Uganda".

Data collection methods

Interview: Face-to-face
Questionnaire
Physical measurements and tests

Geographic regions

Uganda

Key dates

Data Collection Period: July 2017 - April 2019
Date submitted to repository: 7 March 2023

Keywords

Developmental disability, Cost, Child

Language of written material

English

Creators

Forename	Surname	Faculty / Dept	Institution	Role
Kenneth	Katumba	Faculty of Public Health and Policy/Department of Global Health and Development Medical Research Council/Uganda Virus Research Institute and London School of Hygiene & Tropical Medicine Uganda Research Unit	London School of Hygiene & Tropical Medicine	Data Creator
Emily	Webb	Faculty of Epidemiology and Population Health / Department of Infectious Disease Epidemiology	London School of Hygiene & Tropical Medicine	Data Creator
Giulia	Greco	Faculty of Public Health and Policy / Department of Global Health and Development	London School of Hygiene & Tropical Medicine	Data Creator
Cally	Tann	Faculty of Infectious and Tropical Diseases Department of Clinical Research	London School of Hygiene & Tropical Medicine	Data Creator
Janet	Seeley	Faculty of Public Health and Policy / Department of Global Health and Development Medical Research Council/Uganda Virus Research Institute and London School of Hygiene & Tropical Medicine Uganda Research Unit	London School of Hygiene & Tropical Medicine	Data Creator
Margaret	Nampijja		Medical Research Council/Uganda Virus Research Institute and London School of Hygiene & Tropical Medicine Uganda Research Unit	Data Creator
Patrick	Tenywa		Medical Research Council/Uganda Virus Research Institute and London School of Hygiene & Tropical Medicine Uganda Research Unit	Data Creator

File description

Filename	Description	Access status	Licence
EIP_COI_DB_data	Dataset listing costs to families relating to caring for a young child with developmental disability in Uganda	Controlled	Data sharing agreement
EIP_COI_DB_data_codebook	Codebook for costs dataset	Open	Creative Commons Attribution (CCBY)