Participatory Visual Methods with caregivers of children with Congenital Zika Syndrome in Colombia: A case study

Reichenberger, V. 2022. Participatory Visual Methods with caregivers of children with Congenital Zika Syndrome in Colombia: A case study. [Online]. London School of Hygiene & Tropical Medicine, London, United Kingdom. Available from: https://doi.org/10.17037/DATA.00002745.

Reichenberger, V. Participatory Visual Methods with caregivers of children with Congenital Zika Syndrome in Colombia: A case study [Internet]. London School of Hygiene & Tropical Medicine; 2022. Available from: https://doi.org/10.17037/DATA.00002745.

Reichenberger, V (2022). Participatory Visual Methods with caregivers of children with Congenital Zika Syndrome in Colombia: A case study. [Data Collection]. London School of Hygiene & Tropical Medicine, London, United Kingdom. https://doi.org/10.17037/DATA.00002745.

Description

Description of data capture The Participatory Video (PV) process was conducted in Cali, Colombia in September 2019. The aim of the PV was to explore the impact of the Juntos programme on caregivers’ lives. A group of 11 Colombian caregivers of children with CZS who had taken part in the Juntos programme were approached to take part. Of the 11 caregivers contacted, eight agreed to participate in the process. Following the InsightShare27 methodology from which the facilitator did her training, a one-day workshop was led by the first author. It was held at a local NGO office where the eight caregivers attended with their children. Participants consisted of six mothers, one grandmother and one sister of children with CZS. The PV process involved a story circle, where the participants each shared their experience of the Juntos programme and how it impacted their lives. On the same day, they were taught how to film by an experienced filmmaker and facilitator. With one camera available, each caregiver took turns filming another, singing to their child. They learned how to start and stop the camera, zoom, and check the sound. They then watched each practice video to understand and identify what they would want to re-create visually for the final video. Participants jointly decided through storyboarding what would be discussed in the final video, and what footage would be shot. A collective decision was made by the participant group that two caregivers would talk while others would either film or show visually what was being said in front of the camera (e.g., how to feed their child, how to play, how to make specific props learned in Juntos). All caregivers contributed to this process. Editing was then discussed, and the facilitator edited the film according to these suggestions. The final version of the film was agreed through dialogues among the facilitator and the caregivers involved, who explained what music, texts, and effects they wanted in the film. Digital Storytelling The Digital Storytelling project was conducted online in September 2020, following the Story Center28 methodology from which the facilitator did her training. Of the eight mothers who took part in the PV process, six went on to participate in an initial online story circle which was undertaken through the Zoom platform. The Digital Stories explored the experience of healthcare access for children with disabilities in Colombia, including reported facilitators and barriers. During the story circle, participants shared their child’s story on healthcare access and identified a specific story that they would like to make a video about. They were then shown examples of Digital Stories, so they could explore how they could portray their stories visually. One week later, another session took place online where caregivers read their story and gave feedback to each other. From there, caregivers collected photos and videos to portray their story, which were sent to the facilitator (VR). Editing was completed by the facilitator, who followed closely what the participant suggested. The videos were then shared among the caregivers.
Data capture method Other
Data Collection Period
FromTo
18 September 201916 September 2020
Date (Completed) 4 February 2022
Geographical area covered
North LatitudeEast LongitudeSouth LatitudeWest Longitude
3.86137-75.81762.94837-76.7871
Language(s) of written materials English
Data Creators Reichenberger, V
LSHTM Faculty/Department Faculty of Infectious and Tropical Diseases > Dept of Clinical Research
Participating Institutions London School of Hygiene & Tropical Medicine, London, United Kingdom
Funders
ProjectFunderGrant NumberFunder URI
Development of an early intervention to support babies with Congenital Zika Syndrome and their families: Proposal for Support of Dissemination PhaseWellcome Trust212156/Z/18/Zhttp://dx.doi.org/10.13039/100010269
Date Deposited 09 Feb 2022 11:44
Last Modified 09 Feb 2022 11:47
Publisher London School of Hygiene & Tropical Medicine

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Filename: La discapacidad en medio de una sala de urgencias.mov

Description: Digital storytelling 2 - La discapacidad en medio de una sala de urgencias

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File size: 602MB

Mime-Type: video/quicktime

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Filename: Falta_de_tacto_de_algunos_profesionales.mov

Description: Digital storytelling 1 - Falta de tacto de algunos profesionales

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Content type: Video

File size: 391MB

Mime-Type: video/quicktime

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Filename: Gabriela_venciendo_el_Zika.mov

Description: Digital storytelling 2 - Gabriela venciendo el Zika

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Content type: Video

File size: 510MB

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Filename: PV_Colombia_subs.mov

Description: Participatory Video - Columbia

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Content type: Video

File size: 601MB

Mime-Type: video/quicktime

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Study Instrument

Filename: Interview_guide_PV_and_DST.docx

Description: Interview guide - Participatory Video (PV) and DST

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File size: 15kB

Mime-Type: application/vnd.openxmlformats-officedocument.wordprocessingml.document

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