Ebola Survivors Lived Experiences – Coding Framework

Kinyanda, E, Rutakumwa, R, Mpango, RS, Kyohangirwe, L, Settuba, E and Ninsiima, S. 2025. Ebola Survivors Lived Experiences – Coding Framework. [Online]. London School of Hygiene & Tropical Medicine, London, United Kingdom. Available from: https://doi.org/10.17037/DATA.00004561.

Kinyanda, E, Rutakumwa, R, Mpango, RS, Kyohangirwe, L, Settuba, E and Ninsiima, S. Ebola Survivors Lived Experiences – Coding Framework [Internet]. London School of Hygiene & Tropical Medicine; 2025. Available from: https://doi.org/10.17037/DATA.00004561.

Kinyanda, E, Rutakumwa, R, Mpango, RS, Kyohangirwe, L, Settuba, E and Ninsiima, S (2025). Ebola Survivors Lived Experiences – Coding Framework. [Data Collection]. London School of Hygiene & Tropical Medicine, London, United Kingdom. https://doi.org/10.17037/DATA.00004561.

Description

The tabular dataset contains anonymised quotes that outline the lived experiences of survivors of the Ebola virus disease (EVD). Data was collected from a set of 15 in-depth interview participants. The transcripts from these interviews cover a range of topics, including lived experiences (including psychological distress, psychosocial challenges) of the patients/survivors of the Ebola Virus Disease (EVD), their beliefs (including misperceptions such as witchcraft) and coping mechanisms for managing EVD. This data supports the publication, “A qualitative study of Ebola survivors’ psychological experiences of evacuation, treatment and community reintegration: Lessons in holistic person-centred care from the 2022 outbreak in Uganda”.

Methods

Description of data capture

Qualitative, in-depth interviews were held with 15 participants, selected from a purposive sample of EVD survivors. The participants were interviewed at their health facility or any other venue of their choice usually within their community. The interviews, which were conducted in the local language, Luganda, lasted 45 to 90 minutes and mainly elicited participants’ perspectives on their lived experiences with the EVD and their coping mechanisms. Data in the form of voice recordings were transcribed verbatim, and the transcripts were subjected to a meticulous anonymisation process before analysis was conducted. A thematic analysis was conducted, by which the aim was to explore in detail EVD survivors’ lived experiences, their beliefs around EVD and their coping mechanisms.

Data capture method

Interview: Face-to-face

Data Collection Period

From	To
September 2023	December 2023

Date (Completed)

3 February 2025

Language(s) of written materials

English

People & Groups

Data Creators	Kinyanda, E, Rutakumwa, R, Mpango, RS, Kyohangirwe, L, Settuba, E and Ninsiima, S
LSHTM Faculty/Department	MRC/UVRI and LSHTM Uganda Research Unit
Participating Institutions	MRC/UVRI & LSHTM Uganda Research Unit, Entebbe, Uganda

Projects

Funders

Project	Funder	Grant Number	Funder URI
Project to address the medium-to-long-term EBOLA associated psychological Distress and psychosocial problems in Mubende District in central Uganda	Medical Research Council	MC_PC_22014	http://dx.doi.org/10.13039/501100000265

Additional Information

Date Deposited	12 Feb 2025 12:38
Last Modified	12 Feb 2025 12:38
Publisher	London School of Hygiene & Tropical Medicine

Downloads

Data / Code

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Filename: Ebola_Survivors-Coding_Framework.csv

Description: Interview quotes exploring EVD Survivors' experience of evacuation, the isolation centre, Ebola Treatment Unit (ETU) and within community following hospital discharge

Licence: Data Sharing Agreement

Content type: Dataset

File size: 54B

Mime-Type: text/plain

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