Ebola Survivors Lived Experiences – Coding Framework
, Rutakumwa, R, Mpango, RS, Kyohangirwe, L, Settuba, E and Ninsiima, S
(2025).
Ebola Survivors Lived Experiences – Coding Framework.
[Dataset].
London School of Hygiene & Tropical Medicine, London, United Kingdom.
10.17037/DATA.00004561.
The tabular dataset contains anonymised quotes that outline the lived experiences of survivors of the Ebola virus disease (EVD). Data was collected from a set of 15 in-depth interview participants. The transcripts from these interviews cover a range of topics, including lived experiences (including psychological distress, psychosocial challenges) of the patients/survivors of the Ebola Virus Disease (EVD), their beliefs (including misperceptions such as witchcraft) and coping mechanisms for managing EVD. This data supports the publication, “A qualitative study of Ebola survivors’ psychological experiences of evacuation, treatment and community reintegration: Lessons in holistic person-centred care from the 2022 outbreak in Uganda”.
Additional Information
The raw interview transcripts cannot be shared due to the presence of identifiable information. However, a dataset containing selected interview quotes that explore EVD Survivors' experiences following hospital discharge are held in the LSHTM data repository at https://doi.org/10.17037/DATA.00004561. This data cannot be made open access, due to contextual information within the quotes that cannot be fully de-identified. However, it will be provided via controlled access without undue reservations. Request for data access can also be made to the MRC/UVRI & LSHTM data sharing committee at: datasharing@mrcuganda.org.
Keywords
Ebola Virus disease, mental health, holistic person-centred care, Uganda| Item Type | Dataset |
|---|---|
| Description of data capture | Qualitative, in-depth interviews were held with 15 participants, selected from a purposive sample of EVD survivors. The participants were interviewed at their health facility or any other venue of their choice usually within their community. The interviews, which were conducted in the local language, Luganda, lasted 45 to 90 minutes and mainly elicited participants’ perspectives on their lived experiences with the EVD and their coping mechanisms. Data in the form of voice recordings were transcribed verbatim, and the transcripts were subjected to a meticulous anonymisation process before analysis was conducted. A thematic analysis was conducted, by which the aim was to explore in detail EVD survivors’ lived experiences, their beliefs around EVD and their coping mechanisms. |
| Capture method | Interview: Face-to-face |
| Collection Period |
From To September 2023 December 2023 |
| Date | 3 February 2025 |
| Language(s) of written materials | English |
| Creator(s) |
Kinyanda, E, Rutakumwa, R, Mpango, RS, Kyohangirwe, L, Settuba, E and Ninsiima, S
|
| LSHTM Faculty/Department | MRC/UVRI and LSHTM Uganda Research Unit |
| Participating Institutions | MRC/UVRI & LSHTM Uganda Research Unit, Entebbe, Uganda |
| Funders |
Project Funder Grant Number Funder URI Project to address the medium-to-long-term EBOLA associated psychological Distress and psychosocial problems in Mubende District in central Uganda MC_PC_22014 http://dx.doi.org/10.13039/501100000265 |
| Date Deposited | 12 Feb 2025 12:38 |
| Last Modified | 02 Apr 2025 14:35 |
| Publisher | London School of Hygiene & Tropical Medicine |
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subject - Data
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lock - Restricted to Request access for all
- Data Sharing Agreement
- Available under Data Sharing Agreement
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info - Interview quotes exploring EVD Survivors' experience of evacuation, the isolation centre, Ebola Treatment Unit (ETU) and within community following hospital discharge
description - text/plain
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- 54B
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subject - Documentation
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- Available under Creative Commons: Attribution 4.0
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info - User guide for EVD Survivors' experience
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