Presence of recommendations for the management of malnourished children living with disabilities in national and international SAM guidelines: Interview transcripts and guideline content spreadsheet
Engl, M and Kerac, M
(2021).
Presence of recommendations for the management of malnourished children living with disabilities in national and international SAM guidelines: Interview transcripts and guideline content spreadsheet.
[Dataset].
London School of Hygiene & Tropical Medicine, London, United Kingdom.
10.17037/DATA.00002513.
(2021).
Presence of recommendations for the management of malnourished children living with disabilities in national and international SAM guidelines: Interview transcripts and guideline content spreadsheet.
[Dataset].
London School of Hygiene & Tropical Medicine, London, United Kingdom.
10.17037/DATA.00002513.
The collection consists of: (1) A set of interview transcripts covering the perceived barriers to formalising guidelines regarding the treatment of severe acute malnutrition in children living with disabilities. Interviews were conducted with eight experts involved in guideline development and provide a first scoping and identification of possible issues leading to an underrepresentation of this vulnerable patient group in malnutrition guidelines; and (2) An Excel spreadsheet containing summarised content information of 71 national and international malnutrition guidelines for an overview of available guidance for children living with disabilities.
Additional Information
Data access will be provided to users on condition that they are (a) performing relevant health research and (b) provide a detailed plan for ethics approval. They will be asked to sign a Memorandum of Understanding (MoU) that outlines confidentiality requirements and permitted data use. Users will also be asked to maintain the confidentiality of any guidelines that are not publicly available.
Keywords
Disability; Malnutrition; Malnutrition guidelines; Undernutrition; Severe acute malnutrition; Children living with disabilities; Wasting| Item Type | Dataset |
|---|---|
| Resource Type |
Resource Type Resource Description Dataset Qualitative |
| Description of data capture | Interviews were conducted via an online video call with eight experts involved in malnutrition guideline development. Interviewees received a participant information sheet and gave their informed consent. Interviews were transcribed, anonymised and offered to the interviewees for revision regarding accuracy. 71 malnutrition guidelines were sourced online (via a common search engine and through resource collections of malnutrition working groups, homepages of national health ministries or NGO homepages) and via professional contacts. They were read in their entirety, then relevant content (e.g. on clinical recommendations, availability of links to other disability specific guidance etc.) was extracted into an excel spreadsheet to provide a comprehensive overview. |
| Capture method | Interview: Web-based |
| Collection Period |
From To May 2020 August 2020 |
| Date | 27 September 2021 |
| Language(s) of written materials | English |
| Creator(s) |
Engl, M and Kerac, M
|
| LSHTM Faculty/Department | Faculty of Epidemiology and Population Health > Dept of Population Health (2012- ) |
| Participating Institutions | London School of Hygiene & Tropical Medicine, London, United Kingdom |
| Funders |
Project Funder Grant Number Funder URI Infants <6 Months and Children Living with Disabilities in Guidelines for Severe Acute Malnutrition: An AGREE Appraisal of National and International Guidelines 21844 https://doi.org/10.13039/100009660 |
| Date Deposited | 27 Sep 2021 09:58 |
| Last Modified | 07 Jan 2026 17:21 |
| Publisher | London School of Hygiene & Tropical Medicine |
Data / Code
Transcript_Interviews.zip
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subject - Data
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lock - Restricted to Request access for all
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copyright - Available under Data Sharing Agreement
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info - Interview transcript 1-8: Discussion with a malnutrition expert on perceived barriers to formalising recommendations for the management of severe malnutrition in children living with disabilities
folder_zip - application/zip
- folder_info
- 217B
Malnutrition_guidelines_summary.xlsx
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subject - Data
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lock - Restricted to Request access for all
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copyright - Available under Data Sharing Agreement
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info - Spreadsheet summarizing content of 71 national and international malnutrition guidelines
grid_on - application/vnd.openxmlformats-officedocument.spreadsheetml.sheet
- folder_info
- 140kB
Documentation
2513_UserGuide.html
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subject - Documentation
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- Available under Creative Commons: Attribution 3.0
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info - User guide for qualitative research
html - text/html
- folder_info
- 8kB
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