Engl, M and Kerac, M. 2021. Presence of recommendations for the management of malnourished children living with disabilities in national and international SAM guidelines: Interview transcripts and guideline content spreadsheet. [Online]. London School of Hygiene & Tropical Medicine, London, United Kingdom. Available from: https://doi.org/10.17037/DATA.00002513.
Engl, M and Kerac, M. Presence of recommendations for the management of malnourished children living with disabilities in national and international SAM guidelines: Interview transcripts and guideline content spreadsheet [Internet]. London School of Hygiene & Tropical Medicine; 2021. Available from: https://doi.org/10.17037/DATA.00002513.
Engl, M and Kerac, M (2021). Presence of recommendations for the management of malnourished children living with disabilities in national and international SAM guidelines: Interview transcripts and guideline content spreadsheet. [Data Collection]. London School of Hygiene & Tropical Medicine, London, United Kingdom. https://doi.org/10.17037/DATA.00002513.
Description
The collection consists of: (1) A set of interview transcripts covering the perceived barriers to formalising guidelines regarding the treatment of severe acute malnutrition in children living with disabilities. Interviews were conducted with eight experts involved in guideline development and provide a first scoping and identification of possible issues leading to an underrepresentation of this vulnerable patient group in malnutrition guidelines; and (2) An Excel spreadsheet containing summarised content information of 71 national and international malnutrition guidelines for an overview of available guidance for children living with disabilities.
Additional information
Data access will be provided to users on condition that they are (a) performing relevant health research and (b) provide a detailed plan for ethics approval. They will be asked to sign a Memorandum of Understanding (MoU) that outlines confidentiality requirements and permitted data use. Users will also be asked to maintain the confidentiality of any guidelines that are not publicly available.
Description of data capture | Interviews were conducted via an online video call with eight experts involved in malnutrition guideline development. Interviewees received a participant information sheet and gave their informed consent. Interviews were transcribed, anonymised and offered to the interviewees for revision regarding accuracy. 71 malnutrition guidelines were sourced online (via a common search engine and through resource collections of malnutrition working groups, homepages of national health ministries or NGO homepages) and via professional contacts. They were read in their entirety, then relevant content (e.g. on clinical recommendations, availability of links to other disability specific guidance etc.) was extracted into an excel spreadsheet to provide a comprehensive overview. | ||||
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Data capture method | Interview: Web-based | ||||
Data Collection Period |
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Date (Date submitted to LSHTM repository) | 27 September 2021 | ||||
Language(s) of written materials | English |
Data Creators | Engl, M and Kerac, M |
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LSHTM Faculty/Department | Faculty of Epidemiology and Population Health > Dept of Population Health (2012- ) |
Participating Institutions | London School of Hygiene & Tropical Medicine, London, United Kingdom |
Funders |
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Date Deposited | 27 Sep 2021 09:58 |
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Last Modified | 17 Feb 2022 09:33 |
Publisher | London School of Hygiene & Tropical Medicine |
Downloads
Data / Code
Restricted to: Request access for all
Filename: Transcript_Interviews.zip
Description: Interview transcript 1-8: Discussion with a malnutrition expert on perceived barriers to formalising recommendations for the management of severe malnutrition in children living with disabilities
Licence: Data Sharing Agreement
Content type: Textual content
File size: 217B
Mime-Type: application/zip
Restricted to: Request access for all
Filename: Malnutrition_guidelines_summary.xlsx
Description: Spreadsheet summarizing content of 71 national and international malnutrition guidelines
Licence: Data Sharing Agreement
Content type: Dataset
File size: 140kB
Mime-Type: application/vnd.openxmlformats-officedocument.spreadsheetml.sheet
Documentation
Filename: 2513_UserGuide.html
Description: User guide for qualitative research
Content type: Textual content
File size: 8kB
Mime-Type: text/html