Supporting Children with Disabilities in Nutrition Programmes: thematic analysis of training and guidelines key informant interviews
Fulford, K, Delacey, E
, Beckerlegge, F, Hayes, J, De Silva, H and Kerac, M
(2025).
Supporting Children with Disabilities in Nutrition Programmes: thematic analysis of training and guidelines key informant interviews.
[Dataset].
London School of Hygiene & Tropical Medicine, London, United Kingdom.
10.17037/DATA.00004807.
, Beckerlegge, F, Hayes, J, De Silva, H and Kerac, M
(2025).
Supporting Children with Disabilities in Nutrition Programmes: thematic analysis of training and guidelines key informant interviews.
[Dataset].
London School of Hygiene & Tropical Medicine, London, United Kingdom.
10.17037/DATA.00004807.
Children with disabilities are often excluded in nutrition policy, programming and practice. A recently established “Feeding and Disability Resource Bank” collated currently available guidelines and training materials relevant to this group. It forms an important baseline for improved future guidelines and training materials to better support nutrition among children with disabilities.
The primary objective of this study was to analyse guidance, existing training materials, programme packages and programmatic guidelines. Semi-structured key-informant interviews were conducted to identify priority areas for improvement of the resources, and to place findings in context with the main barriers and facilitators to their use. This dataset includes transcripts of key informant interviews performed with twelve public health professionals.
Additional Information
Researchers wishing to access the interview transcripts are invited to complete a data application form, outlining their proposed research. Access will be provided, subject to the signing of a Data Transfer Agreement that outlines conditions for secure storage and citation.
Keywords
Disability; Guidelines; Qualitative interviews; Nutrition| Item Type | Dataset |
|---|---|
| Resource Type |
Resource Type Resource Description Dataset Qualitative |
| Description of data capture | The primary objective of the study was a thematic analysis of training materials, program packages and programmatic guidance related to supporting nutritional care for children with disabilities. The analysis was complemented with semi-structured key-informant interviews to help identify priority areas for improvement of the resources, and to place findings in context with the main barriers and facilitators to their use. A phenomenological approach was adopted to explore the key-informants real world experience of accessing and implementing these resources. A mixture of purposive and snowball sampling was used to email and invite professionals to share their expertise in a key-informant interview. Key-informants were selected based on experience at either program or policy level (ideally also with experience of front-line work) to achieve an overview of current global practice. The selection criteria aimed to identify experts from the field of nutrition or disability who also have the unique experience of managing the overlap of the two. Key-informants were selected to represent a variety of different professional backgrounds, sectors, and geographies. Purposive sampling started with 4 participants, and the remaining key-informants were snowball sampled until a sense of saturation was felt. The interviews were semi-structured in nature, following a topic guide that covered all three objectives. The questions aimed to further explore the strengths and weaknesses of the resources available, the barriers and facilitators to their implementation, and finally identify priority areas for development of the literature. Early findings from the thematic analysis were used to refine the topic guide. The interviews were conducted via Zoom from the interviewers and key-informant’s home or work space. Meetings were recorded and transcribed using Zoom’s own closed caption software. The transcriptions were checked and edited on Microsoft Word by the interviewer, using audio recording of the meeting. Transcripts were made anonymous through the removal of any identifiable information and categorisation of job roles, projects, locations and organisations. |
| Capture method | Interview: Web-based |
| Collection Period |
From To 9 July 2024 7 August 2024 |
| Date | 3 September 2025 |
| Language(s) of written materials | English |
| Creator(s) |
Fulford, K, Delacey, E, Beckerlegge, F, Hayes, J, De Silva, H and Kerac, M
|
| LSHTM Faculty/Department | Faculty of Epidemiology and Population Health > Dept of Population Health (2012- ) |
| Research Centre | Centre for Maternal, Reproductive and Child Health (MARCH) |
| Research Group | Nutrition Group |
| Participating Institutions | London School of Hygiene & Tropical Medicine, London, United Kingdom; Holt International, United States; Mary Sheridan Centre for Child Health, London, United Kingdom; Kyaninga Child Development Centre, Uganda |
| Date Deposited | 05 Sep 2025 08:49 |
| Last Modified | 05 Sep 2025 09:05 |
| Publisher | London School of Hygiene & Tropical Medicine |
Data / Code
Interview_transcripts.zip
-
subject - Data
-
lock - Restricted to Request access for all
- Data Sharing Agreement
- Available under Data Sharing Agreement
-
info - Transcripts of 12 interviews performed with research participants
folder_zip - application/zip
- folder_info
- 251B
Documentation
Disability_Consent_Information.pdf
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subject - Documentation
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- Available under Creative Commons: Attribution 4.0
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info - Participant information sheet and consent form for Key-Informant Interviews
picture_as_pdf - application/pdf
- folder_info
- 249kB
Study Instrument
Interview_topic_guide.pdf
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subject - Study Instrument
-
- Available under Creative Commons: Attribution 4.0
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info - Framework outlining questions covered in key informant interviews
picture_as_pdf - application/pdf
- folder_info
- 209kB
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