An online survey of adults with cystic fibrosis: accessing and using life expectancy information
Keogh, R
(2019).
An online survey of adults with cystic fibrosis: accessing and using life expectancy information.
[Dataset].
London School of Hygiene & Tropical Medicine, London, United Kingdom.
10.17037/DATA.00001077.
(2019).
An online survey of adults with cystic fibrosis: accessing and using life expectancy information.
[Dataset].
London School of Hygiene & Tropical Medicine, London, United Kingdom.
10.17037/DATA.00001077.
A spreadsheet containing a subset of the original data from all respondents (n=85) from an online questionnaire entitled "Online survey to gain understanding of what people with cystic fibrosis aged 16+ would like to learn about their life expectancy and other outcomes". The survey was conducted in July 2016. Responses to all multiple choice questions are included. Free text responses have been removed in accordance with information provided to the respondents. Ages have been categorised. The data do not contain any identifying information.
Additional Information
Data access is restricted to comply with the participant consent agreement.
Keywords
Cystic fibrosis; Life expectancy; United Kingdom| Item Type | Dataset |
|---|---|
| Resource Type |
Resource Type Resource Description Dataset Other |
| Description of data capture | The target population for the online survey were people with CF aged 16 and older who lived in the UK. The survey was performed using Bristol Online Surveys (https://www.onlinesurveys.ac.uk) and available online for a two-week period (4-18 July 2016). The survey was advertised at the start of this period by the Cystic Fibrosis Trust using Facebook and Twitter. Reminders were placed after 1 week. The survey was also promoted by others on social media. |
| Capture method | Questionnaire: Fixed form - Web-based |
| Collection Period |
From To 4 July 2016 18 July 2016 |
| Date | 12 March 2019 |
| Language(s) of written materials | English |
| Creator(s) |
Keogh, R
|
| LSHTM Faculty/Department | Faculty of Epidemiology and Population Health > Dept of Medical Statistics |
| Participating Institutions | London School of Hygiene & Tropical Medicine, London, United Kingdom |
| Funders |
Project Funder Grant Number Funder URI Medical Research Council Fellowship (Ruth Keogh) MR/M014827/1 http://dx.doi.org/10.13039/501100000265 |
| Date Deposited | 22 Mar 2019 11:47 |
| Last Modified | 03 Feb 2026 13:43 |
| Publisher | London School of Hygiene & Tropical Medicine |
Data / Code
CFQ_data.csv
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subject - Data
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lock - Restricted to Request access for all
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copyright - Available under Data Sharing Agreement
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info - Results of an online survey to determine the type of information that people with Cystic Fibrosis would like to learn about their life expectancy and other outcomes.
description - text/plain
- folder_info
- 59B
Documentation
UserGuide.html
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subject - Documentation
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- Available under Creative Commons: Attribution 3.0
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info - User guide for CF dataset
html - text/html
- folder_info
- 4kB
Codebook.html
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subject - Documentation
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- Available under Creative Commons: Attribution 3.0
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info - Codebook for CF dataset
html - text/html
- folder_info
- 13kB
Study Instrument
CF-questionnaire.pdf
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subject - Study Instrument
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- Available under Creative Commons: Attribution 3.0
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info - PDF export of web-based questionnaire to gain understanding of what people with Cystic Fibrosis aged 16+ would like to learn about their life expectancy and other outcomes
picture_as_pdf - application/pdf
- folder_info
- 159kB
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