An online survey of adults with cystic fibrosis: accessing and using life expectancy information

Keogh, R. 2019. An online survey of adults with cystic fibrosis: accessing and using life expectancy information. [Online]. London School of Hygiene & Tropical Medicine, London, United Kingdom. Available from: https://doi.org/10.17037/DATA.00001077.

Keogh, R. An online survey of adults with cystic fibrosis: accessing and using life expectancy information [Internet]. London School of Hygiene & Tropical Medicine; 2019. Available from: https://doi.org/10.17037/DATA.00001077.

Keogh, R (2019). An online survey of adults with cystic fibrosis: accessing and using life expectancy information. [Data Collection]. London School of Hygiene & Tropical Medicine, London, United Kingdom. https://doi.org/10.17037/DATA.00001077.

Description

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Methods

Description of data capture The target population for the online survey were people with CF aged 16 and older who lived in the UK. The survey was performed using Bristol Online Surveys (https://www.onlinesurveys.ac.uk) and available online for a two-week period (4-18 July 2016). The survey was advertised at the start of this period by the Cystic Fibrosis Trust using Facebook and Twitter. Reminders were placed after 1 week. The survey was also promoted by others on social media.
Data capture method Questionnaire: Fixed form - Web-based
Data Collection Period
FromTo
4 July 201618 July 2016
Date (Date submitted to LSHTM repository) 12 March 2019
Language(s) of written materials English

People & Groups

Data Creators Keogh, R
LSHTM Faculty/Department Faculty of Epidemiology and Population Health > Dept of Medical Statistics
Participating Institutions London School of Hygiene & Tropical Medicine, London, United Kingdom

Projects

Funders
ProjectFunderGrant NumberFunder URI
Medical Research Council Fellowship (Ruth Keogh)Medical Research CouncilMR/M014827/1http://dx.doi.org/10.13039/501100000265

Additional Information

Date Deposited 22 Mar 2019 11:47
Last Modified 08 Jul 2021 12:52
Publisher London School of Hygiene & Tropical Medicine

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CFQ_data Request access

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Filename: CFQ_data.csv

Description: Results of an online survey to determine the type of information that people with Cystic Fibrosis would like to learn about their life expectancy and other outcomes.

Licence: Data Sharing Agreement

Content type: Dataset

File size: 59B

Mime-Type: text/plain

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Documentation

UserGuide Download

Filename: UserGuide.html

Description: User guide for CF dataset

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Content type: Textual content

File size: 4kB

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Codebook Download

Filename: Codebook.html

Description: Codebook for CF dataset

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File size: 13kB

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Study Instrument

CF-questionnaire Download

Filename: CF-questionnaire.pdf

Description: PDF export of web-based questionnaire to gain understanding of what people with Cystic Fibrosis aged 16+ would like to learn about their life expectancy and other outcomes

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Content type: Textual content

File size: 159kB

Mime-Type: application/pdf

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