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      <item>The Aaurum Institute, Johannesburg, South Africa</item>
      <item>National Health Laboratory Services, Johannesburg, South Africa</item>
      <item>University of Cape Town, Rondebosch, Cape Town, South Africa</item>
      <item>Gauteng Department of Health, Johannesburg, South Africa</item>
    </corp_creators>
    <title>XPHACTOR cross-sectional patient cost dataset</title>
    <divisions>
      <item>EPID</item>
      <item>ITCR</item>
      <item>PHGH</item>
    </divisions>
    <keywords>
      <item>Patient costs</item>
      <item>HIV positive</item>
      <item>Tuberculosis</item>
      <item>South Africa</item>
    </keywords>
    <note>Data was obtained from study participants on the basis that it would be used for HIV and TB related research. To comply with the study’s ethical obligations, the dataset can only be made available on condition that the requester provides details of their research and signs a data sharing agreement.</note>
    <abstract>The costs incurred by patients in seeking care are considered a potential barrier to healthcare seeking behaviour. Given the global move towards Universal Health Care (UHC) which includes financial protection from the cost of ill health, there is a need to estimate the burden of costs incurred by patients to identify possible policy interventions. We used patient cost data collected alongside the “Xpert for people attending HIV/AIDS care: test or review?” (XPHACTOR) study to estimate the costs incurred by the study population when accessing care. In addition, we also looked at the cost burden on caregivers. This dataset includes observations for 289 people accessing HIV/AIDS care among</abstract>
    <date>2018-08-01</date>
    <date_type>completed</date_type>
    <publisher>London School of Hygiene &amp; Tropical Medicine</publisher>
    <id_number>10.17037/DATA.00000791</id_number>
    <data_type>Dataset</data_type>
    <copyright_holders>
      <item>London School of Hygiene &amp; Tropical Medicine, London, United Kingdom</item>
    </copyright_holders>
    <research_centre>
      <item>XTBC</item>
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      <item>Interview.FaceToFace</item>
      <item>SelfAdministeredQuestionnaire.FixedForm.Paper</item>
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    <barnard_cr>
      <item>162</item>
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      <item>KM</item>
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    <full_text_status>restricted</full_text_status>
    <place_of_pub>London, United Kingdom</place_of_pub>
    <funders>
      <item>Bill &amp; Melinda Gates Foundation</item>
    </funders>
    <projects>
      <item>XPHACTOR</item>
    </projects>
    <resourcetype>
      <resourcetypegeneral>Dataset</resourcetypegeneral>
      <resourcetype>Quantitative</resourcetype>
    </resourcetype>
    <collection_method>Data collection: Double entry to EpiData, followed by a process for identifying data entry errors with export to STATA for analysis

Data Analysis and Preparation: Cross sectional patient cost study. Estimated direct costs, indirect (productivity) costs, carer and coping costs. Differences in cost burden were explored by individual income level as well as HIV disease severity (CD4 count).

Quality Controls: The patient cost study was conducted alongside the XPHACTOR study, quality controls included a review of completed paper questionnaires by the health economist. Data entry errors were minimised through double data entry and discrepancies were investigated by comparing conflicting entries against the paper questionnaires.</collection_method>
    <grant>OPP1034523</grant>
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        <north_edge>-26.1744</north_edge>
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    <language>
      <item>en</item>
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      <date_from>2013-06</date_from>
      <date_to>2014-03</date_to>
    </collection_date>
    <repo_link>
      <item>
        <title>Patient costs incurred by people living with HIV/AIDS prior to ART initiation in primary healthcare facilities in Gauteng, South Africa.</title>
        <link>https://researchonline.lshtm.ac.uk/id/eprint/4651671</link>
      </item>
    </repo_link>
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      <item>
        <project>XPHACTOR</project>
        <funder_name>Bill &amp; Melinda Gates Foundation</funder_name>
        <grant>OPP1034523</grant>
      </item>
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      <item>
        <grant>OPP1034523</grant>
      </item>
    </project_funders_info>
    <ukri_date_sub>2018-08-01</ukri_date_sub>
  </eprint>
</eprints>
