User Guide for "Retention of adults from fishing communities in an HIV vaccine preparedness study in Masaka, Uganda"

Permanent Identifier

http://dx.doi.org/10.17037/DATA.00000912

Data Description

An anonymised data set of 654 fisherfolk living on the shores of Lake Victoria who were enrolled in an open cohort vaccine preparedness study in Masaka Uganda. They visited the study clinic quarterly to have HIV counselling and testing for a period of two years. At baseline, socio-demographic and HIV risk behaviour data was collected. During follow-up data HIV risk behaviour data was collected every 6 months. Volunteers who did not return for two consecutive visits and those who seroconverted were discontinued from the study.

Data Collection Methods

Data was captured using paper-based interviewer administered questionnaires. This was then entered into a Microsoft Access database. Using preset data cleaning checks it was cleaned routinely throughout the study period. It was then transferred to Stata 14.0 (Stata Corp, College Station, TX, USA) for analysis.

Geographic regions

Masaka district in Uganda.

Key dates

Data collection took place between 6 Jan 2012- 6-Jan 2015.

Quality Controls

The study clinic team performed initial data checks on the completed volunteer consents and data collection tools and all queries generated were resolved in real time. The data entered in Microsoft Access was subject to routine checks using a set of pre-determined query checks for consistency and logic. All queries generated were returned to the clinic team and resolved.

Species:

Human population

Privacy:

All personal identifying data has been anonymised and cannot be linked to the actual participants.

Ethics

The study was approved by:

Written informed consent was obtained from each participant before enrolment.

Keywords

Fishing communities, HIV vaccine preparedness, HIV, HIV vaccine, HIV risk behaviour

Language of written material

English

Project title

A Prospective, open cohort, Observational Study to Determine HIV incidence in Preparation for future Preventive HIV Vaccine Clinical Trials

Funder/Sponsor

International AIDS Vaccine Initiative (IAVI)

Data Creators

Forename Surname Faculty / Dept Institution Role
Ubaldo Bahemuka MRC-UVRI & LSHTM Uganda Research Unit MRC-UVRI & LSHTM Uganda Research Unit Contact person, data collector and Project leader
Andrew Abaasa MRC-UVRI & LSHTM Uganda Research Unit MRC-UVRI & LSHTM Uganda Research Unit Statistician

Associated Roles

Forename Surname Faculty / Dept Institution Role
Ayoub Katende MRC-UVRI & LSHTM Uganda Research Unit MRC-UVRI & LSHTM Uganda Research Unit Data Manager

File Description

Filename Description Access status Licence
IAVI_dataset.csv Dataset contains participant [1] socio-demographic data collected at enrolment [2] HIV risk behaviour throughout the study and [3] study termination status. Request access for all Data sharing agreement
IAVI_Codebook.html Variable-level description of the IAVI dataset Open CC-BY
UserGuide.html This document Open CC-BY
ConsentForm.pdf Consent form used by the study Open CC-BY