Uganda Liver Disease Study (ULIDS) HBV data – User Guide

Persistent identifier

10.17037/DATA.00004660

Description

Dataset containing information collected from 210 individuals diagnosed with chronic Hepatitis B virus who gave informed consent to participate in the Uganda General Population Cohort and Uganda Liver Disease Study. The dataset contains variables on demographics, self-reported medical history and alcohol consumption, anthropometric and laboratory results recorded in 2011 and 2023.

Data collection methods

Primary data was collected using hard copy standardized questionnaires in addition to direct input into Redcap database using standard GPC data collection templates.

Data analysis and preparation

The data were checked for any inconsistencies, out of range values, duplication and other anomalies. The cleaned data were analysed using descriptive statistics.

Geographic regions

Southwestern Uganda

Key dates

Data were collected from GPC survey rounds 22 (years 2010-11) and survey round 34 (2022-23)

Quality controls

Consistency, date, completeness checks were included on the database at design phase.

Population

Human population of participants enrolled in the GPC in southwestern Uganda.

Privacy

Data were stored in pseudonymised format in accordance with GPC protocols.

Ethics

Organisation Ethics ID Other information
Science and Ethics Committee of the Uganda Virus Research Institute GC/127/12/11/06 -
the Ugandan National Council for Science and Technology HS870 -
East of England-Cambridge South (formerly Cambridgeshire 4) NHS Research Ethics Committee UK 11/H0305/5 -

Keywords

HBV, HIV, Uganda, APRI, elastography, fibroscan, liver function, treatment, resistance

Language of written material

English. Study paperwork also available in Luganda.

Project information

Project name Funder/sponsor Grant number
Uganda Liver Disease Study Medical Research Council (core funding) N/A
  John Fell Fund -
  University of Oxford -

Creators

h2>Creators <
Forename Surname Faculty / DeptInstitution Role
Sheila Lumley NDM University of Oxford Contact Person
Beatrice Kimono   MRC/UVRI and LSHTM Uganda Research Unit Data Collector, Project Member, Researcher
Joseph Mugisha   MRC/UVRI and LSHTM Uganda Research Unit Data Collector, Project Member, Researcher
Ronald Makanga   MRC/UVRI and LSHTM Uganda Research Unit Data Manager
Moses Kwizera Mbonye   MRC/UVRI and LSHTM Uganda Research Unit Data Collector, Project Member
Kevin Ojambo   MRC/UVRI and LSHTM Uganda Research Unit Project Member, Researcher
Elizabeth Waddilove   The Francis Crick Institute Project Member, Researcher
Chris Kent Institute of Microbiology and Infection University of Birmingham Project Member, Researcher
Brian Ssengendo   MRC/UVRI and LSHTM Uganda Research Unit Data Manager
Richard Ndungutse   MRC/UVRI and LSHTM Uganda Research Unit Data Collector, Project Member, Researcher
Anna McNaughton Population Health Sciences University of Bristol Project Member, Researcher
Florence Nambaziira Muzaale   MRC/UVRI and LSHTM Uganda Research Unit Project Member, Researcher
Janet Seeley   MRC/UVRI and LSHTM Uganda Research Unit Project Member, Researcher
Josh Quick Institute of Microbiology and Infection University of Birmingham Project Member, Researcher
Ponsiano Ocama   Makerere University College of Health Sciences in Kampala Project Member
Robert Newton   MRC/UVRI and LSHTM Uganda Research Unit Supervisor, Work Package Leader
Philippa Matthew   The Francis Crick Institute Supervisor, Work Package Leader

File description

Filename Description Access status Licence
ULiDS_data Dataset containing all variables used for analysis Request access for all Data sharing agreement for request access
ULiDS_data_codebook Codebook for ULiDS dataset Open Creative Commons Attribution (CCBY)
4660_UserGuide User guide for ULiDS dataset Open Creative Commons Attribution (CCBY)