10.17037/DATA.00003192
The collection consists of: (1) An Excel spreadsheet containing deidentified content information of 189 participants of an international online survey among stakeholders in nutrition and child health about the implementation of the novel care approach for small and nutritionally at-risk infants under six months and their mothers (MAMI Care Pathway). (2) A set of interview transcripts covering the perceived enablers and barriers to implementation of the MAMI Care Pathway on country-level. Interviews were conducted with a subset of survey respondents from various geographical regions and stakeholder types, 14 in total.
Data access will be provided to users on condition that they are (a) performing relevant health research and (b) provide a detailed plan for ethics approval. They will be asked to sign a Memorandum of Understanding (MoU) that outlines confidentiality requirements and permitted data use.
The following variables are contained within the mami stakeholder survey 2021 dataset. Please state the specific variables that you wish to analyse when applying for data access.
| Variable name | Variable description | Answer code | Answer label | Variable type |
| ID | Participant ID number (unlinked) | Numeric | ||
| Q7 | Participant age | Numeric | ||
| 1 | 30 or under | |||
| 2 | 31- 40 | |||
| 3 | 41-50 | |||
| 4 | 51- 60 | |||
| 5 | Above 60 | |||
| Q8 | Participant sex | Numeric | ||
| 1 | Male | |||
| 2 | Female | |||
| 3 | Prefer not to say | |||
| Q9 | Participant highest educational achievement | Numeric | ||
| 1 | secondary school | |||
| 2 | undergraduate | |||
| 3 | master | |||
| 4 | doctoral | |||
| 5 | Other | |||
| Q9_a | Other - Highest education level | String | ||
| B.sc | ||||
| DEA en NUTRITION-SANTE | ||||
| DES pédiatrie et Gaastroentérologie pédiatrique | ||||
| Licence | ||||
| Licence en soins infirmiers et obstétricales | ||||
| Master 2 | ||||
| postgraduate | ||||
| Specialty Certificate in pediatrics and child health | ||||
| universitario | ||||
| Q10 | The main country you are currently working in or have recent experience in (free text) | String | ||
| Afghanistan | ||||
| Argentina | ||||
| Bangladesh | ||||
| Burkina Faso | ||||
| Burundi | ||||
| Cambodia | ||||
| Cameroon | ||||
| Colombia | ||||
| Côte d'Ivoire | ||||
| D.R Congo | ||||
| Ethiopia | ||||
| Gabon | ||||
| Gambia | ||||
| Ghana | ||||
| Ghana | ||||
| Global | ||||
| Global - West/East Africa, Middle East, Asia | ||||
| Yemen, Nigeria, Ethiopia, Sudan, Kenya and Uganda. | ||||
| Greece | ||||
| Guatemala | ||||
| Haiti | ||||
| India | ||||
| India, Ethiopia | ||||
| India/Malawi/Tanzania | ||||
| Indonesia | ||||
| Italy | ||||
| Kakamega | ||||
| Kenya | ||||
| Laos | ||||
| Lebanon | ||||
| Liberia | ||||
| Madagascar | ||||
| Malawi | ||||
| Mali | ||||
| Middle East Countries + Nigeria, Zimbabwe | ||||
| Nepal | ||||
| Niger | ||||
| Niger Burundi | ||||
| Nigeria | ||||
| oPt | ||||
| Pakistan | ||||
| Papua New Guinea | ||||
| Perú | ||||
| Philippines | ||||
| RD Congo | ||||
| RDC | ||||
| République Démocratique du Congo | ||||
| Sahel | ||||
| Senegal | ||||
| Somalia | ||||
| South Sudan | ||||
| Sudan | ||||
| Syria | ||||
| Tajikistan | ||||
| Tanzania | ||||
| The Gambia | ||||
| The Philippines | ||||
| Uganda | ||||
| United Kingdom | ||||
| United States | ||||
| Venezuela | ||||
| US, SSA, ASEAN, SAsia | ||||
| Yemen | ||||
| Zimbabwe | ||||
| Q11 | The type of organisation(s) you are currently working for (choose all that apply) | |||
| Q11_1 | Government | |||
| 0 | No | |||
| 1 | Yes | |||
| Q11_2 | University or Research Institute | |||
| 0 | No | |||
| 1 | Yes | |||
| Q11_3 | Non-Governmental Organisation (NGO) | |||
| 0 | No | |||
| 1 | Yes | |||
| Q11_4 | United Nation or other multinational agency | |||
| 0 | No | |||
| 1 | Yes | |||
| Q11_5 | Independent | |||
| 0 | No | |||
| 1 | Yes | |||
| Q11_6 | Private sector | |||
| 0 | No | |||
| 1 | Yes | |||
| Q11_7 | other | |||
| 0 | No | |||
| 1 | Yes | |||
| Q12 | Your role in maternal and child nutrition in the country you work in/ have experience in (choose the one that applies best) | |||
| 1 | policy maker | |||
| 2 | program manager | |||
| 3 | clinician | |||
| 4 | academic or researcher | |||
| Q12_a | Undefined | |||
| 1 | ||||
| 2 | ||||
| 3 | ||||
| 4 | ||||
| Q13 | 1. In the country where I work, among the groups of small and at-risk infants u6m/ their mothers (MAMI), these are sufficiently identified and managed: | |||
| Q13_1 | a. low birthweight or premature infants | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q13_2 | b. malnourishes infants | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q13_3 | c. infants experiencing growth faltering/ failure to thrive | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q13_4 | d. infants with breastfeeding challenges | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q13_5 | e. infants with underlying chronic illness or disability. | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q13_6 | f. mothers who are malnourished | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q13_7 | g. mothers who are physically or mentally ill | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q13_8 | h. adolescent mothers | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q13_a | Comments | String | ||
| Q14 | 2. This MAMI Care Pathway: | |||
| Q14_1 | a. is an approach I am familiar with. | 1 to 6 | ||
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q14_2 | b. elements have been implemented in the country where I work. | 1 to 6 | ||
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q14_3 | c. is a clearly formulated approach. | 1 to 6 | ||
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q14_4 | d. is feasible to implement in my specific context. | 1 to 6 | ||
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q14_5 | e. information about this is easily accessible | 1 to 6 | ||
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q14_6 | f. will likely have an observable impact. | 1 to 6 | ||
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q14_7 | g. could easily be pilot tested in the country I mentioned | 1 to 6 | ||
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q14_a | Comments | String | ||
| Q15 | 3. More evidence to support this MAMI Care Pathway is needed on (select the 3 most important): | |||
| Q15_1 | a. definition of at-risk groups | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q15_2 | b. prevalence of at-risk groups in the country where I work | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q15_3 | c. anthropometric to use for screening and follow-up | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q15_4 | d. effect on growth and health outcomes | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q15_5 | e. cost- effectiveness | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q15_6 | f. risks and adverse outcomes | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q15_7 | g. type of milk-based supplement to provide | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q15_8 | h. supplementary feeding techniques | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q15_9 | i. mental health care | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q15_10 | j. Other | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q15_a | Comments (5 responses) | String | ||
| Q15_b | Comments (12 responses) | String | ||
| Q16 | 4. In the country where I work, Primary Health Care workers: | |||
| Q16_1 | a. Will likely have a positive attitude towards this approach. | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q16_2 | b. Are sufficiently competent to provide this care. | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q16_3 | c. Will have sufficient time to provide this care | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q16_4 | d. Generally, are familiar with working with guidelines. | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q17 | 5. In the country where I work, Community Health Workers: | |||
| Q17_1 | a. Will likely have a positive attitude towards this approach. | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q17_2 | b. Are sufficiently competent to provide this care. | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q17_3 | c. Will have sufficient time to provide this care. | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q17_4 | d. Generally, are familiar with working with guidelines. | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q17_a | Comments | String | ||
| Q18 | 6. In the country where I work, small and nutritionally at-risk infants u6m and their mothers | |||
| Q18_1 | a. routinely seek care in the formal health system. | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q18_2 | b. will typically first seek care in traditional/ informal medicine. | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q18_3 | c. will typically have sufficient means (money and transport) for referral to a hospital. | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q18_4 | d. would prefer outpatient treatment when there are no complications. [Likert] | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q18_a | Comments | String | ||
| Q19 | 7. In the country where I work, small and nutritionally at-risk infants u6m and their mothers are most in need of (select the 3 most important): | |||
| Q19_1 | a. early detection | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q19_2 | b. close growth monitoring. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q19_3 | c. clinical care. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q19_4 | d. breast feeding support. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q19_5 | e. a milk- based supplement readily available. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q19_6 | f. maternal mental health support. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q19_7 | g. involvement of their community in treatment. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q19_8 | h. close follow-up | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q19_9 | i. other | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q19_a | Comments | String | ||
| Q19_b | Comments | String | ||
| Q20 | 8. Financial resources needed to (further) implement the MAMI Care Pathway in the country where I work include (select all that apply): | |||
| Q20_1 | a. finances for training and implementation activities. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q20_2 | b. material and equipment. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q20_3 | c. additional human resources. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q20_4 | d. health worker incentives. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q20_5 | e. patient incentives. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q20_6 | f. milk-based product readily available at outpatient care level. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q20_7 | g. Other | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q20_a | Comments | String | ||
| Q20_b | Comments | String | ||
| Q21 | 9. Information resources needed to (further) implement the MAMI Care Pathway in the country where I work include (select all that apply): | |||
| Q21_1 | a. community level screening data. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q21_2 | b. health services management data. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q21_3 | c. continuous education programs. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q21_4 | d. clinical MAMI guidelines adapted to the context | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q21_5 | e. scientific research/ evidence from my country. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q21_6 | f. Other | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q21_a | Comments | String | ||
| Q21_b | Comments | String | ||
| Q22 | 10. Concerning (further) implementation of the MAMI Care Pathway in the country where I work: | |||
| Q22_1 | a. it would be easy to implement this approach. | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q22_2 | b. minimal financial resources will be required. | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q22_3 | c. leaders/ managers are capable in managing this change. | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q22_4 | d. monitoring and feedback systems are adequate. | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q22_5 | e. this approach has already been adopted/ promoted by credible institutions. | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q22_a | Comments | String | ||
| Q23 | 11. Actors who will most likely support implementation of the MAMI Care Pathway in the country where I work include (select all that apply): | |||
| Q23_1 | a. Government policy makers | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q23_2 | b. Front line health workers. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q23_3 | c. Medical experts. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q23_4 | d. Medical professional organisations. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q23_5 | e. Researchers. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q23_6 | f. NGO’s. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q23_7 | g. Funding agencies. | Numeric | ||
| 0 | No | |||
| 1 | Yes | |||
| Q23_8 | h. Infant formula industry | |||
| Numeric | ||||
| 0 | No | |||
| 1 | Yes | |||
| Q23_9 | i. Religious leaders/ societal groups | |||
| Numeric | ||||
| 0 | No | |||
| 1 | Yes | |||
| Q23_10 | Undefined | |||
| Numeric | ||||
| 0 | No | |||
| 1 | Yes | |||
| Q23_11 | Undefined | |||
| Numeric | ||||
| 0 | No | |||
| 1 | Yes | |||
| Q23_a | Comments | String | ||
| Q23_b | Comments | String | ||
| Q24 | 12. Concerning the social and political environment in the country where I work, the MAMI Care Pathway: | |||
| Q24_1 | a. Is a relevant approach for the context. | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q24_2 | b. Will easily be set as a priority by policy makers. | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q24_3 | c. Will contribute to goals and indicators set by the ministry of health. | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q24_4 | d. Will be supported by legal norms. | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q24_5 | e. Will be supported by cultural norms and beliefs. | 1 to 6 | Numeric | |
| 1 | strongly agree | |||
| 2 | somewhat agree | |||
| 3 | neutral | |||
| 4 | somewhat disagree | |||
| 5 | strongly disagree | |||
| 6 | do not know | |||
| Q24_a | Comments | String |