Data for: Expert review of images from hand-held colposcopy in Zambian women with genital schistosomiasis – Dataset Codebook

Permanent identifier

https://doi.org/10.17037/DATA.00003182

Description

Female genital schistosomiasis (FGS) can occur in the setting of urinary S. haematobium infection, a neglected tropical disease associated with poverty, inadequate sanitation, and limited access to safe drinking water. Confirming a diagnosis of FGS is challenging as there is not a widely accepted diagnostic reference standard for research, diagnosis, and screening. A 2011 expert-led consensus meeting proposed visual inspection of the cervicovaginal mucosa as an adequate reference standard for FGS diagnosis. However, the mucosal changes in visual-FGS are non-specific and have also been associated with bacterial STI, human papillomavirus (HPV) infection, and cervical pre-cancer. Since cervicovaginal visualization is widely promoted for FGS screening and diagnosis, we wished to further evaluate the inter-rater reliability, correlation, and agreement of human expert reviewers in visual-FGS.

Dataset codebook

Variable Name Variable description Variable source Answer code Answer label Variable type
BILID1 BILHIV Study ID number Study generated variable     Integer
district study community Is the patient being recruited in community A or Community B     Integer
      1 Community A  
      2 Community B  
DEMEMP employment status Are you currently working?     Integer
      0 No  
      1 Yes  
micropos Binary variable for urine microscopy -     Integer
      0 Negative  
      1 Positive  
CAAbinary Binary variable for urine CAA -     Integer
      0 urine hemoglobin not detected  
      1 urine hemoglobin detected  
      NULL 2 vials were empty on arrival to Leiden University Med Center  
fgse2 results of image review by reviewer1 study generated variable 0 negative integer
      1 positive VIA  
      null reviewer1 felt 59 images were not of sufficient quality to review  
definite FGS status: Definite FGS (women with any genital PCR with Schistosoma DNA detected) -     Integer
      0 Negative  
      1 Positive  
hiv1 hiv status Lab data from the HPTN 071 (PopART) study - HIV status     Integer
      0 Negative  
      1 Positive  
      null data were missing on 4 women  
stiany STI status: any sexually transmitted infection detected (chlamydia, gonorrhea, trichomonas, mycoplasma genitalium) Lab data from the BILHIV study     Integer
      0 No  
      1 Yes  
      NULL data were missing on 316 women (sti testing was only done on a subset of the women)  
crowding1 household members Including yourself, how many people are living in your household?     Integer
      0 1-3 persons  
      1 4-5 persons  
      2 6+ persons  
sexdebut age at sexual debut How old were you when you first had sex?     Integer
      0 8-16 years of age  
      1 17-19 years of age  
      2 20-24 years of age  
sexin6 sexual activity status Have you been sexually active in the last 6 months?     Integer
      0 No  
      1 Yes  
      NULL 2 people preferred not to answer and were made missing  
condomuse condom used at last sexual encounter The last time you had sex, did you/your partner use a male or female condom?     Integer
      0 No  
      1 Yes  
      NULL 10 people preferred not to answer and were made missing  
wateruse water use - binary variable Do you currently, regularly go into (ie swimming, bathing) or use (ie washing, cooking) fresh water outdoors (river, stream, swamp, lake, etc)?     integer
      0 no  
      1 yes  
cwateruse water use as a child - binary variable As a child (i.e. age <10) did you regularly go into (ie swimming, bathing) or use (ie washing, cooking) fresh water outdoors (river, stream, swamp, lake, etc)?     integer
      0 no  
      1 yes  
edu3 data reduced education variable What is your level of education?      
      0 none/any primary  
      1 any secondary  
      2 trade, degree, higher  
marst1 marital status What is your marital status?     Integer
      1 Single  
      2 Married or living as married  
      3 Divorced/separated/widowed  
anyhc1 contraceptive use: use of any of the stated contraceptive methods Study generated variable     Integer
      0 No hormonal contraception use  
      1 Yes - using hormonal contraception  
partners1 lifetime sexual partners How many sexual partners have you had in your lifetime?     Integer
      0 1 lifetime partner  
      1 2 lifetime partners  
      2 3 lifetime partners  
      3 4+ lifetime partners  
priorpreg history of previous pregnancy - Have you ever been pregnant?       integer
      0 no  
      1 yes  
      NULL 1 person preferred not to answer and was made missing  
viaresult results of via screen for cervical cancer study generated variable     integer
      0 negative  
      1 positive VIA  
      null 290 women did not undergo VIA screening (it was optional and not part of the study)  
agegp4 data reduced age variable How old are you?     Integer
      1 age 18-24  
      2 age 25-31  
fgsb2a results of image review by reviewer2 study generated variable 0 negative integer
      1 positive VIA  
      null reviewer2 felt 110 images were not of sufficient quality to review