10.17037/DATA.00002840
A spreadsheet containing selected transcript quotations collected from 18 in-depth interview participants. The interview transcripts cover a range of topics, including the experience of living with severe mental illness, relapse of mental illness episodes, and abuse/victimisation and its various forms. Themes covers include physical, sexual & psychological victimisation; causes of vulnerability to victimisation of people with severe mental illness; what can be done to reduce victimisation; experience of living with severe mental illness; mental illness treatment experience and challenges.
Qualitative, in-depth interviews were held with 18 participants, selected from a purposive sample of patients who have suffered from severe mental illness but had experienced symptom remission. These participants had suffered victimisation before acquiring a mental illness or while suffering a mental illness.
Voice recordings were transcribed verbatim and the transcripts anonymised before analysis. An interpretative phenomenological analysis (IPA) was conducted, by which the aim was to explore in detail participants’ life-worlds and the meanings they attach to these, in this case victimisation experiences of persons living with severe mental illness.
Data collection for the SMILE study took place at the out-patients departments (OPDs) of Butabika National Psychiatric Referral Hospital and Masaka Regional Referral Hospital.
Data collection for the SMILE study started in January 2018 and ended in March 2020.
The data were designed with checks for completeness, range checks, cross-referencing checks and consistency checks.
Data cleaning was also done on relevant variables to prepare the data for analysis. Quality was ensured by following specific protocols and SOPs, having regular audits, and clear documentation of all processes.
Human population
We protected the confidentiality of personal and/or sensitive information by adopting several strategies, including (i) training research team members (research assistants) on strategies for protecting confidentiality, and (ii) ensuring participant names were removed from the interview transcripts.
The study obtained ethical approvals from the Uganda Virus Research Institute’s Research and Ethics Committee (GC/127/19/10/612) and the Uganda National Council of Science and Technology (HS 2337).
Victimisation, severe mental illness, Uganda
English and Luganda
Project title | Funder | Grant number |
Sexual and Physical Abuse among Patients with Severe Mental Illness in Kampala and Masaka | Medical Research Council | MRC core funded |
Forename | Surname | Faculty / Dept | Institution | Role |
Eugene | Kinyanda | Mental health section | The Medical Research Council/Uganda Virus Research Institute and London School of Hygiene & Tropical Medicine Uganda Research Unit | Principal Investigator |
Carol | Birungi | Makerere University | Project leader | |
Richard | Mpango | Mental health section | The Medical Research Council/Uganda Virus Research Institute and London School of Hygiene & Tropical Medicine Uganda Research Unit | Study coordinator |
Joshua | Ssebunya | Mental health section | The Medical Research Council/Uganda Virus Research Institute and London School of Hygiene & Tropical Medicine Uganda Research Unit | Data Manager |
Fred | Nyiiro | African Psycare Research Organisation | Data collector | |
Jackie | Mbabazi | African Psycare Research Organisation | Data collector | |
Jalia | Nakaweesa | African Psycare Research Organisation | Data collector | |
Teddy | Ayikoru | African Psycare Research Organisation | Data collector | |
Jane | Edwards | African Psycare Research Organisation | Data collector | |
Silvern | Turinayo | African Psycare Research Organisation | Data collector | |
Diana | Namugumya | African Psycare Research Organisation | Data collector |
Filename | Description | Access status | Licence |
Coding_Framework_data | A spreadsheet containing selected transcript quotations collected from 18 in-depth interview participants (P1-P18). | Request access for all | Data sharing agreement |
The Coding framework data spreadsheet contains selected quotations of 18 participants on their experience of victimisation. The spreadsheet contains seven (7) high-level categories and three (3) sub-sections on physical, sexual, and psychological victimisation.
Physical Victimisation | History of victimisation b4 onset of SMI |
Victimisation during SMI | |
Impact of physical victimisation | |
Sexual Victimisation | History of victimisation b4 onset of SMI |
Victimisation during SMI | |
Impact of sexual victimisation | |
Psychological Victimisation | History of victimisation b4 onset of SMI |
Victimisation during SMI | |
Psychological Impact of victimisation | |
What causes vulnerability to victimisation of people with SMI | |
What can be done to reduce victimisation | |
Experience of living with severe mental illness | |
Mental illness treatment experience & challenges |