The feasibility of a group intervention for children with congenital zika syndrome – qualitative dataset

Permanent Identifier:

https://doi.org/10.17037/DATA.00001762

Title:

The feasibility of a group intervention for children with congenital zika syndrome – qualitative dataset

Alternative Title

Data for: “Mothers as facilitators for a parent group intervention for children with congenital zika syndrome: qualitative findings from a feasibility study in Brazil”

Data Description

Qualitative data set produced as part of a study which aimed to explore the acceptability, demand, implementation, practicality and adaption of a group programme among caregivers of children with congenital zika syndrome in Brazil. The data set consists of anonymised transcripts of interviews with nine caregivers and four group facilitators.

Data Collection Methods

The nine caregivers were purposively selected from participants of the feasibility study. Three participants per group were selected after the completion of the ten intervention sessions. Participants were selected at the discretion of the researchers to reflect a broad range of perspectives (eg caregivers of children with different severities of disabilities, different caregivers that included mothers, fathers and grandmothers.) Interviews took place in a private room and they were audio recorded.

Geographic regions

Greater Salvador, Bahia, Brazil.

Key dates

Start and end date of data capture: August 2017 – May 2018

Date when the final version of the data was produced: October 2019

Quality Controls

The interview guide was piloted for understanding. Words and phrases relating to the effect of having an expert mother facilitate the intervention were identified and were then discussed between the two psychologists for agreement and checked and verified by an additional researcher. Consensus was gained through discussion.

Privacy:

All personal and sensitive information are anonymised manually

Ethics

Ethical approval was gained from Instituto de Saúde Coletiva - ISC/UFBA Ethics Ref 2.369.348, Instituto Fernandes Figueira - IFF/ FIOCRUZ - RJ/MS Ethics Ref 2.183.547 and LSHTM Ethics Ref 13608. Written informed consent was acquired from all participants.

Keywords

Congential zika syndrome, zika virus, support group, group intervention

Language of written material

English, Portuguese

Project title

Development of an early intervention to support babies with Congenital Zika Syndrome and their families

Funder/Sponsor

Wellcome Trust and Department for International Development

Grant Number

206719/Z/17/Z

Data Creators

File Description