BILHIV acceptability dataset - codebook

Permanent Identifier:

https://doi.org/10.17037/DATA.00001618.

Data Description

This dataset contains demographic characteristics and other information used to determine the acceptability of genital self-sampling for the detection of Schistosoma DNA in the BILHIV study.

Dataset variables

Variable title Variable description (1) Variable description (2) Response value Response label
DISTRICT Community A or B      
      1 Community A
      2 Community B
agegp3 Participant age group      
      1 18-22
      2 23-26
      3 27-31
BILID Participant ID number      
LANG What is your preferred language?      
      0 English Only
      5 Bemba
      6 Lozi
      7 Tonga
      8 Nyanja
EDU1 What is your level of education?      
      0 No schooling
      1 Any Primary School
      3 Any Secondary school
      5 Trade/technical training with or without certificate/diploma
      6 Degree or higher
MARST What is your marital status?      
      1 Single
      2 Married or living as married
      3 Divorced/separated
      4 Widowed
DEMEMP Are you currently working?      
      0 No
      1 Yes
CH20USE As a child (i.e. age <10) did you regularly go into (ie swimming, bathing) or use (ie washing, cooking) fresh water outdoors (river, stream, swamp, lake, etc)?      
      0 No
      4 Yes – once weekly
      6 Yes – every 1-2 months
      8 Yes – every 6-12 months
H20USE Do you currently, regularly go into (ie swimming, bathing) or use (ie washing, cooking) fresh water outdoors (river, stream, swamp, lake, etc)?      
      0 No
      4 Yes – once weekly
      6 Yes – every 1-2 months
      8 Yes – every 6-12 months
HADBILZ Have you ever been told before that you have had schistosomiasis or bilharzia?   0 No
      1 Yes
      2 Maybe - I don't know or I can't remember
VSS I found vaginal self-sampling to be: Please use the scale to rate your experience with sampling at home. The scale is 0 to 4 (0 is “very easy” and 4 is “very difficult”).    
      0 Very Easy
      1 Easy
      2 Neutral
      3 A little difficult
      4 Very Difficult
CSS I found cervical self-sampling to be: Please use the scale to rate your experience with sampling at home. The scale is 0 to 4 (0 is “very easy” and 4 is “very difficult”).    
      0 Very Easy
      1 Easy
      2 Neutral
      3 A little difficult
      4 Very Difficult
USS I found urine self-sampling to be: Please use the scale to rate your experience with sampling at home. The scale is 0 to 4 (0 is “very easy” and 4 is “very difficult”).    
      0 Very Easy
      1 Easy
      2 Neutral
      3 A little difficult
      4 Very Difficult
VSSFUT I would be willing to take a vaginal self-sample in the future. Please use the scale to rate your experience with sampling at home. The scale is 0 to 4 (0 is a "strong yes" and 4 is a "strong no"):    
      0 Strong Yes
      1 Yes
      2 Maybe
      3 No
      4 Strong No
CSSFUT I would be willing to take a cervical self-sample in the future. Please use the scale to rate your experience with sampling at home. The scale is 0 to 4 (0 is a "strong yes" and 4 is a "strong no"):    
      0 Strong Yes
      1 Yes
      2 Maybe
      3 No
      4 Strong No
USSFUT I would be willing to take a urine self-sample in the future. Please use the scale to rate your experience with sampling at home. The scale is 0 to 4 (0 is a "strong yes" and 4 is a "strong no"):    
      0 Strong Yes
      1 Yes
      2 Maybe
      3 No
      4 Strong No
RECSS I would recommend self-sampling to my friends. Please use the scale to rate your experience with sampling at home. The scale is 0 to 4 (0 is a "strong yes" and 4 is a "strong no"):    
      0 Strong Yes
      1 Yes
      2 Maybe
      3 No
      4 Strong No
VSSPAINFUL Self-collecting a vaginal swab was painful. Please use the scale to rate your experience with sampling at home. The scale is 0 to 4 (0 is a "strong yes" and 4 is a "strong no"):    
      0 Strong Yes
      1 Yes
      2 Maybe
      3 No
      4 Strong No
CSSPAINFUL Self-collecting a cervical swab was painful. Please use the scale to rate your experience with sampling at home. The scale is 0 to 4 (0 is a "strong yes" and 4 is a "strong no"):    
      0 Strong Yes
      1 Yes
      2 Maybe
      3 No
      4 Strong No
SSWORRY I am confident I collected the specimens properly. Please use the scale to rate your experience with sampling at home. The scale is 0 to 4 (0 is a "strong yes" and 4 is a "strong no"):    
      0 Strong Yes
      1 Yes
      2 Maybe
      3 No
      4 Strong No
VSSCONF I feel confident I collected a sample from my vagina. Please use the scale to rate your experience with sampling at home. The scale is 0 to 4 (0 is a "strong yes" and 4 is a "strong no"):    
      0 Strong Yes
      1 Yes
      2 Maybe
      3 No
      4 Strong No
CSSCONF I feel confident I collected a sample from my cervix. Please use the scale to rate your experience with sampling at home. The scale is 0 to 4 (0 is a "strong yes" and 4 is a "strong no"):    
      0 Strong Yes
      1 Yes
      2 Maybe
      3 No
      4 Strong No
PREF Do you prefer to take your samples at home, or would you prefer to take samples at the clinic?      
      0 Clinic
      1 Home
prefhomec I prefer doing samples at home because It is more convenient      
      0 Not Selected
      1 Selected
prefhometransport I prefer doing samples at home because I don't have transportation to go to the clinic      
      0 Not Selected
      1 Selected
prefhomechild I prefer doing samples at home because I don't have childcare to go to the clinic      
      0 Not Selected
      1 Selected
prefhomework I prefer doing samples at home because I need to work and can't go to the clinic      
      0 Not Selected
      1 Selected
prefhomeother I prefer doing samples at home because Other reason that going to the clinic is not convenient for me      
      0 Not Selected
      1 Selected
prefhomeprivacy I prefer doing samples at home because I have more privacy at home      
      0 Not Selected
      1 Selected
prefhomeeasy I prefer doing samples at home because It is easier to sample at home      
      0 Not Selected
      1 Selected
prefcliprivacy I prefer having samples performed in the clinic because I don't have privacy at home      
      0 Not Selected
      1 Selected
prefclidisc I prefer having samples performed in the clinic because I had discomfort with collecting my own samples      
      0 Not Selected
      1 Selected
prefcliunsure I prefer having samples performed in the clinic because I was unsure if I did the sampling properly      
      0 Not Selected
      1 Selected
prefclisupervise I prefer having samples performed in the clinic because I'd like more supervision      
      0 Not Selected
      1 Selected
prefcliother I prefer having samples performed in the clinic because of another reason      
      0 Not Selected
      1 Selected