The feasibility of a group intervention for children with congenital zika syndrome – qualitative dataset

Matos, M, Reis, J, Smythe, T, Duttine, A, Ferrite, S and Kuper, H. 2020. The feasibility of a group intervention for children with congenital zika syndrome – qualitative dataset. [Online]. London School of Hygiene & Tropical Medicine, London, United Kingdom. Available from: https://doi.org/10.17037/DATA.00001762.

Matos, M, Reis, J, Smythe, T, Duttine, A, Ferrite, S and Kuper, H. The feasibility of a group intervention for children with congenital zika syndrome – qualitative dataset. [Internet] LSHTM Data Compass. London, United Kingdom: London School of Hygiene & Tropical Medicine; 2020. Available from: https://doi.org/10.17037/DATA.00001762.

Matos, M, Reis, J, Smythe, T, Duttine, A, Ferrite, S and Kuper, H (2020). The feasibility of a group intervention for children with congenital zika syndrome – qualitative dataset. [Data Collection]. London School of Hygiene & Tropical Medicine, London, United Kingdom. https://doi.org/10.17037/DATA.00001762.

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Description of data capture The nine caregivers were purposively selected from participants of the feasibility study. Three participants per group were selected after the completion of the ten intervention sessions. Participants were selected at the discretion of the researchers to reflect a broad range of perspectives (eg caregivers of children with different severities of disabilities, different caregivers that included mothers, fathers and grandmothers.) Interviews took place in a private room and they were audio recorded.
Data capture method Interview: Face-to-face
Data Collection Period
FromTo
August 2017May 2018
Date (Completed) 18 May 2020
Geographical area covered
North LatitudeEast LongitudeSouth LatitudeWest Longitude
-12.97-38.4768-13.0002-38.5166
Language(s) of written materials English, Portuguese
Data Creators Matos, M, Reis, J, Smythe, T, Duttine, A, Ferrite, S and Kuper, H
LSHTM Faculty/Department Faculty of Infectious and Tropical Diseases > Dept of Clinical Research
Research Group International Centre for Evidence in Disability
Participating Institutions Universidade Federal da Bahia, Salvador, Brazil, Rehabilitation Institute of Bahia, London School of Hygiene & Tropical Medicine, London, United Kingdom, Federal University of Bahia, Salvador, Brazil
Funders
ProjectFunderGrant NumberFunder URI
Development of an early intervention to support babies with Congenital Zika Syndrome and their familiesWellcome Trust206719/Z/17/Zhttp://dx.doi.org/10.13039/100010269
Development of an early intervention to support babies with Congenital Zika Syndrome and their familiesDepartment for International Development206719/Z/17/Zhttp://dx.doi.org/10.13039/501100000278
Depositor Gareth Knight
Date Deposited 21 May 2020 14:04
Last Modified 02 Jun 2020 14:27
Publisher London School of Hygiene & Tropical Medicine

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Filename: Caregiver_interview_transcript.txt

Description: Caregiver interview transcript - General health and wellbeing of the child, changes experienced by the caregiver over the course of the intervention, the role of the support group. Access will be provided to anonymised transcripts only.

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Filename: Facilitator_interview_transcript.txt

Description: Facilitator interview transcript - Reflection on the programme, topics of the programme, impact of the programme, need for the programme. Access will be provided to anonymised transcripts only. No identifiable information will be provided

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File size: 178B

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Documentation

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Description: User guide for qualitative dataset

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Study Instrument

Filename: Topic_guide-Caregiver_interviews.pdf

Description: Caregiver interview topic guide - General health and wellbeing of the child, changes experienced by the caregiver over the course of the intervention, the role of the support group

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Filename: Topic_guide-Facilitator_interviews.pdf

Description: Facilitator interview topic guide - Reflection on the programme, topics of the programme, impact of the programme, need for the programme

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