XPHACTOR cross-sectional patient cost dataset

Permanent Identifier

The following Digital Object Identifier should be used when citing or linking to this resource.

https://doi.org/10.17037/DATA.00000791

Data Description

The costs incurred by patients in seeking care are considered a potential barrier to healthcare seeking behaviour. Given the global move towards Universal Health Care (UHC) which includes financial protection from the cost of ill health, there is a need to estimate the burden of costs incurred by patients to identify possible policy interventions. We used patient cost data collected alongside the “Xpert for people attending HIV/AIDS care: test or review?” (XPHACTOR) study to estimate the costs incurred by the study population when accessing care. In addition, we also looked at the cost burden on caregivers. This dataset includes observations for 289 people accessing HIV/AIDS care among

Data Collection Methods

Interview: face-to-face
Questionnaire: Fixed form – paper
Data entry: Double entry to EpiData, followed by a process for identifying data entry errors with export to STATA for analysis

Data Analysis and Preparation

Cross sectional patient cost study. Estimated direct costs, indirect (productivity) costs, carer and coping costs. Differences in cost burden were explored by individual income level as well as HIV disease severity (CD4 count).

Geographic regions

Two primary healthcare clinics in Erkhululeni district, Gauteng province, South Africa.

Key dates

Data collected between June 2013 and March 2014.

Quality Controls

The patient cost study was conducted alongside the XPHACTOR study, quality controls included a review of completed paper questionnaires by the health economist. Data entry errors were minimised through double data entry and discrepancies were investigated by comparing conflicting entries against the paper questionnaires.

Species:

Human population

Privacy:

A study ID was allocated to each participant through the clinical study; the same identifier was used in the patient cost questionnaires. The paper copies of the completed questionnaires are archived in a locked room.

Ethics

London School of Hygiene and Tropical Medicine
University of Cape Town
University of the Witwatersrand

Keywords

Patient costs; HIV positive; Tuberculosis; South Africa

Language of written material

English

Project title

XPHACTOR

Funder/Sponsor

Bill and Melinda Gates Foundation

Grant Number

OPP1034523

Additional Information

Data was obtained from study participants on the basis that it would be used for HIV and TB related research. To comply with the study’s ethical obligations, the dataset can only be made available on condition that the requester provides details of their research and signs a data sharing agreement.

Data Creators

Forename	Surname	Faculty / Dept	Institution	Role
Nicola	Foster	Health Economics Unit	University of Cape Town	Contact Person, Researcher, Data Creator
Yasmeen	Hanifa	TB centre	London School of Hygiene and Tropical Medicine	Data Collector, Researcher, Work Package Leader
Natasha	Pillai	TB centre	London School of Hygiene and Tropical Medicine	Researcher
Tumbare	Roycent	Health Economics Unit	University of Cape Town	Data Manager
Fielding	Katherine	Epidemiology & Population Health / Infectious Disease Epidemiology TB centre	London School of Hygiene and Tropical Medicine	Researcher
Vassall	Anna	Public Health & Policy / Global Health & Development TB centre	London School of Hygiene and Tropical Medicine	Supervisor
Alison D	Grant	Infectious & Tropical Diseases / Clinical Research TB centre	London School of Hygiene and Tropical Medicine	Project Leader

Associated Roles

Forename	Surname	Faculty / Dept	Institution	Role
Alison D	Grant	Infectious & Tropical Diseases / Clinical Research TB centre	London School of Hygiene and Tropical Medicine	Principal Investigator
Gavin J	Churchyard		The Aurum Institute	Principal Investigator
Violet	Chihota		The Aurum Institute	Co-Investigator
Nontobeko	Ndlovu		The Aurum Institute	Co-Investigator
Salome	Charalambous		The Aurum Institute	Co-Investigator
Wendy	Stevens		National Health Laboratory Services	Co-Investigator
Mark	Nicol		University of Cape Town	Co-Investigator
Alan	Karstaedt		Gauteng department of Health	Co-Investigator
Faieza	Sahid		Gauteng Department of Health	Co-Investigator
Lungiswa	Adonis		Gauteng department of Health	Co-Investigator
Kerrigan	McCarthy		The Aurum Institute	Co-Investigator
Nicola	Foster	Health Economics Unit	University of Cape Town	Co-Investigator
Edina	Sinanovic	Health Economics Unit	University of Cape Town	Co-Investigator
Anna	Vassall	Public Health & Policy / Global Health & Development TB centre	London School of Hygiene and Tropical Medicine	Co-Investigator

File Description

Filename	Description	Access status	Licence
Patient_costs_codebook.html	A description of variables and variable coding for the dataset	Open to all	Creative Commons Attribution (CC-BY) for open data
InfoSheet_and_ConsentForm.pdf	The XPHACTOR study information sheet and consent form	Open to all	Creative Commons Attribution (CC-BY) for open data
Data_Collection_Form.pdf	The XPHACTOR economic study questionnaire	Open to all	Creative Commons Attribution (CC-BY) for open data
Patient cost dataset	Cross-sectional patient cost dataset used to replicate analysis presented in paper	Request access for all	Data Sharing Agreement for request access