https://doi.org/10.17037/DATA.00001529
Dataset and associated questionnaire produced as part of a study to identify gaps in the tuberculosis (TB) diagnostic cascade prior to starting treatment conducted in urban and rural health facilities in south-east Ghana among presumptive TB patients routinely identified by a health worker as requiring a sputum TB test. The dataset contains 428 records with 30 variables. Each row refers to a study participant and contains variables of the type of health facility attended, age, educational level, place of residence, socioeconomic status, symptoms of TB (cough, fever, night sweat and weight loss), duration of symptoms, number of symptoms, HIV status, history of diabetes, body mass index, Karnofsky score, ever treated for TB, stigma and distance from residence to health facility. There are also variables on whether a sputum sample was submitted for the test, results received, test results, started TB treatment, duration from test request to sputum submission, reason for not submitting a sputum sample, number of health care providers visited included for each participant.
This codebook lists variables collected in the TB Ghana study dataset. The dataset is restricted to comply with the study's ethical commitment to protect study participants. Anonymised data can be requested for use in research that possesses ethical approval. Correspondence may be directed to researchdatmanagement@lshtm.ac.uk
| Variable name | Variable description | Code | Code description |
| health_facility_type | Type of health facility | 1 | Rural Health Facility |
| 2 | Urban Health Facility | ||
| age_group | Age category | 1 | 18-38 |
| 2 | 39-59 | ||
| 3 | 60 or over | ||
| gender | What gender are you? | 0 | Male |
| 1 | Female | ||
| educational_level | What is your highest level of education? | 1 | No formal education |
| 2 | Primary level/JHS | ||
| 3 | Senior/Tertiary | ||
| place_of_residence | How will you describe your community of residence? | 1 | Urban |
| 2 | Rural | ||
| Socioeconomic_status | Socioeconomic status | 1 | Low |
| 2 | Middle | ||
| 3 | High | ||
| cough | Do you have a cough currently? | 0 | No |
| 1 | Yes | ||
| fever | Do you have a fever? | 0 | No |
| 1 | Yes | ||
| night_sweat | Do you sweat at night (drenching your cloths and bedding)? | 0 | No |
| 1 | Yes | ||
| weight_loss | Have you lost weight recently (not deliberately)? | 0 | No |
| 1 | Yes | ||
| duration_of_symptoms_category | Duration of symptoms category (days) | 1 | 14 days or less |
| 2 | More than 14 days | ||
| number_of_symptoms_category | Number of symptoms category | 0 | 01-02 |
| 1 | 03-04 | ||
| 2 | More than 4 | ||
| HIV_status | What is your HIV status? | 1 | Positive |
| 2 | Negative | ||
| 9 | Don’t know | ||
| diabetes | Have you ever been diagnosed with diabetes? | 0 | No |
| 1 | Yes | ||
| bmi | Body mass index | ||
| karnofsky_score | Karnofsky score | 90 | Able to carry out normal activity and have minor signs or symptoms of disease |
| 80 | Carry out normal activity with effort and have some signs or symptoms of disease | ||
| 70 | Able to care for self but unable to carry on normal activity or to do active work | ||
| 60 | Occasionally require assistance, but able to care for most needs | ||
| 50 | Require considerable assistance and frequent medical care | ||
| 40 | Disabled as a result of illness and require special care and assistance or in bed more than 50% of the time | ||
| 30 | Severely disabled as a result of illness requiring hospitalization or almost completely bedridden | ||
| severity_of_illness | Severity of illness based on Karnofsky score | 1 | Least severe |
| 2 | Less severe | ||
| 3 | Severe | ||
| ever_treated_for_TB | Have you ever been treated for TB? | 0 | No |
| 1 | Yes | ||
| stigma | Participant's perception of TB stigma | 1 | Low perceived stigma |
| 2 | High perceived stigma | ||
| distance_to_laboratory_category | Distance category | 0 | <10 |
| 1 | 10-20 | ||
| 2 | More than 20 | ||
| submitted_sputum | Have you submitted sputum at the laboratory as requested by the health worker? | 0 | No |
| 1 | Yes | ||
| received_results | Have you received the test result? | 0 | No |
| 1 | Yes | ||
| test_results | What is the test result? | 1 | Positive |
| 2 | Negative | ||
| 9 | Don’t know | ||
| started_TB_treatment | Have you started TB treatment? | 0 | No |
| 1 | Yes | ||
| duration_for_sputum_submission | Time from sputum test request to sputum submission | ||
| reason_not_submitted_sputum | Why have you not done the test? | 1 | I am too busy to go to the laboratory |
| 2 | I do not have money to travel to the hospital for the test | ||
| 3 | I cannot produce sputum | ||
| 4 | I feel well | ||
| 5 | Other | ||
| number_of_providers_visited | Number of care providers visited category | 0 | 0 |
| 1 | 1 or more |